We will need about 25 volunteers to help make this a big success! The first and most important thing is word of mouth. We need to let everyone know that we are doing this! I would love to have a big crowd. The bigger the better! I have passed out flyers all over Eureka and everywhere I go. We are leaving them at gas stations, banks everywhere! We put up over 40 signs all around Eureka. We will be on Show Me St. Louis News Channel 5 Monday Oct 12th from 3 until 3:30! Help us pass the word around! We have some amazing raffle items and lunch will be provided for every walker that registers. There is no set donation in order to walk or receive lunch or any of the other free items we will have there. We will be walking around Down Town Eureka. There are lots of really nice stores in the area there! Anyone is more then welcome to stop and shop for awhile! Fred Bird will be there from 11 - 12!!! I have give aways from a few companies, we would love to have more companies support our cause! If interested please contact me asap! We are not asking for a fee to set up a table just items to donate to us for the walk.
Thank you to everyone who has supported us!
Love,
Tammy
Tuesday, October 6, 2009
Monday, September 28, 2009
Happy 19th Birthday Justin
I couldn't make it to the Cemetery today but I hope you got the gifts mom, dad, Chrissy and Jamie let off for you..
The Golf Tournament we had on Sat was a lot of fun! I hope all the golfers enjoyed themselves even though they did get a little wet! Jamie and Joey were soaked! ;0) I guess that means he was out side the cart a lot longer and sticks at golf! I can not wait to have the Walk here in 3 weeks! It's amazing all the love and support we have been receiving over the last year and half. I hope it continues in our fight! I have received many emails from people letting me know that they believe you and the other ones that have lost their life to this disease have been their child's guardian angle through their battle! We love you and miss you every day!
Love your biggest sister,
Tammy
The Golf Tournament we had on Sat was a lot of fun! I hope all the golfers enjoyed themselves even though they did get a little wet! Jamie and Joey were soaked! ;0) I guess that means he was out side the cart a lot longer and sticks at golf! I can not wait to have the Walk here in 3 weeks! It's amazing all the love and support we have been receiving over the last year and half. I hope it continues in our fight! I have received many emails from people letting me know that they believe you and the other ones that have lost their life to this disease have been their child's guardian angle through their battle! We love you and miss you every day!
Love your biggest sister,
Tammy
Friday, September 25, 2009
A GREAT BIG THANK YOU!!!!
I have to give a great big Thank You to the following companies that have supported our cause and helped our Golf Tournament.
Hustler Conveyor Company for sponsoring a Team for our Tournament!!
http://www.hustler-conveyor.com/
Pasta House for donating 150 $5 off coupons!!!!
http://www.pastahouse.com/
Balloons Over the Rainbow for sponsoring a hole at the tournament!!
http://www.balloonsovertherainbow.com/
Pets & Company for donating a 3 day stay for a pet as a prize at the tournament and sponsoring a hole!!!
http://petsandcompany.net/
Cunnetto House of Pasta for donating 2 dinners for prizes at our tournament!!
http://www.cunetto.com/
U Gas for donating a Gas card for a prize in our tournament!!!
http://www.u-gas.com/
Pegg's Pizza for donating a free pizza as a prize for the tournament!!
http://peggsotb.com/
Golf Discount Superstore, South County for donating a Golf Umbrella as a prize for our tournament!!
http://www.golfdiscountsuperstore.com/golf/
Hager Company for making a donation to us to purchase items for the tournament!!!
http://www.hagerhinge.com/
And of Course Elaine Rosi for letting us be apart of this event!! Thank you Very much!!
http://www.rosiacademy.com/
And Sugar Creek Golf Course for letting us hold our event there and all you have done!
Hustler Conveyor Company for sponsoring a Team for our Tournament!!
http://www.hustler-conveyor.com/
Pasta House for donating 150 $5 off coupons!!!!
http://www.pastahouse.com/
Balloons Over the Rainbow for sponsoring a hole at the tournament!!
http://www.balloonsovertherainbow.com/
Pets & Company for donating a 3 day stay for a pet as a prize at the tournament and sponsoring a hole!!!
http://petsandcompany.net/
Cunnetto House of Pasta for donating 2 dinners for prizes at our tournament!!
http://www.cunetto.com/
U Gas for donating a Gas card for a prize in our tournament!!!
http://www.u-gas.com/
Pegg's Pizza for donating a free pizza as a prize for the tournament!!
http://peggsotb.com/
Golf Discount Superstore, South County for donating a Golf Umbrella as a prize for our tournament!!
http://www.golfdiscountsuperstore.com/golf/
Hager Company for making a donation to us to purchase items for the tournament!!!
http://www.hagerhinge.com/
And of Course Elaine Rosi for letting us be apart of this event!! Thank you Very much!!
http://www.rosiacademy.com/
And Sugar Creek Golf Course for letting us hold our event there and all you have done!
We couldn't have pulled it off with our all of you! I will have a longer lsit to post tomorrow. Thank you again!
Love Tammy
Another article!!
http://www.currentnewsmagazine.com/files/Download/mva.pdf
Lemierre Syndrome,
The Forgotten Disease,
Making a Comeback threatening our children’s lives
By Debby Kwiecien
Feature Writer
“When tragedy strikes you change,” said Tammy Valencia. “You look at things
differently.” Tammy’s talking about her 17-year-old brother, Justin Rodgers that passed away
May 12, 2008, the day after Mother’s Day. Justin was a junior at Eureka High School that year and he was getting ready to go to the prom when he began feeling ill. His mom took him to the doctor who checked for strep-throat and gave him a z-pac and told him to go home and
rest; he’d be fine. A few days later Justin was still sick; he had flu-like symptoms
and a bad case of sore throat. This time Mom took him to St. Anthony Hospital’s emergency room and they promptly transferred him to Cardinal Glennon Children’s Hospital. By the time
Justin was diagnosed a week later with lemierre syndrome he was on a respirator and in a drug induced coma, running a fever of 107. He began bleeding internally and was placed on an ECMO machine that filters and cleans the blood. Amonth after being hospitalized Justin passed away.
“The doctors think it may have been caused by either a fight that broke his nose or some dental work he’d recently had done,” said Tammy. “But they’re not really sure.” Lemierre Syndrome, the Forgotten Disease, is a fast acting illness with flu-like symptoms, a severe sore throat and high fever [106 or more]. The fusobacteria embeds itself into the jugular vein and when it begins breaking down it spreads into the rest of the body, through the bloodstream, wreaking irreversible havoc, especially on the lungs or kidneys. Prior to 1936 the mortality rate for lemierre syndrome was 96%; after the widespread use of penicillin the disease was virtually wiped out. According to Tammy there have been only 120 cases in the last 100 years; however, in the last 5 to 6 years it is estimated that there will be 1000 cases every 10 to 15 years and today the cases of lemierre’s syndrome have risen to 100 deaths out of 1000 documented cases.
What’s truly sad is that the disease is curable, if diagnosed quickly with a simple throat swab in the doctor’s office and treated accurately with a simple dose of penicillin. Before Justin passed away Tammy began asking questions. She started with her own children’s pediatrician. “He pulled out this huge medical book,” she said. “And, looked it up. There was only one short paragraph about it without much information.”
That spurred Tammy on to find out more and to start blogging [an online journal]
at www.lemierresyndromjrodgers.blogspot.com about what happened to
Justin. She strongly believes that because physicians have been cutting back on the
use of penicillin to treat their patients it is causing this disease to resurface. She and
her family also decided to start the Justin E. Rodgers Foundation for Lemierres
Awareness, Inc., [JRFLA] in order to get the word out to other families about this
life threatening disease that is totally curable. Visit www.lemierresyndrom.com for
more information about the disease.
Tammy has also made it her mission to contact every doctor, every hospital, and
every healthcare facility in the US with information about lemierre syndrome. She
has already mailed out 750 letters to emergent care facilities across the US. She is
on a mission to save lives and does not plan to stop until she has made as many
healthcare professionals aware of this as possible.
The JRFLA has teamed up with Elaine Rosi Academy for Children’s fifth annual
golf tournament to be held Sept. 26, 2009 at the Sugar Creek Golf Course. There
is a 7 a.m. shotgun start, 4-person scramble [$99.95 per golfer] with golf pro shop
awards, cash awarded for first place in multiple flights, prizes for longest drive and
closest to pin, $25,000 hole in one prize, unlimited beer, soda and water, complimentary
grilled lunch buffet, optional skins games for $5 per golfer, raffles and
50/50s. For more information or to sign up call Tammy at 314-566-4970.
JRFLA is also holding a walkathon at Lions Park in Eureka October 17 at 10
a.m. There will be hotdogs and hamburgers available for purchase, anyone is invited
to come and walk and there will be silicone bracelets for sale. Watch the
Current’s Community Calendar for more information. Or visit www.lemierresyndromjrodgers.
blogspot.com for updates.
Lemierre Syndrome,
The Forgotten Disease,
Making a Comeback threatening our children’s lives
By Debby Kwiecien
Feature Writer
“When tragedy strikes you change,” said Tammy Valencia. “You look at things
differently.” Tammy’s talking about her 17-year-old brother, Justin Rodgers that passed away
May 12, 2008, the day after Mother’s Day. Justin was a junior at Eureka High School that year and he was getting ready to go to the prom when he began feeling ill. His mom took him to the doctor who checked for strep-throat and gave him a z-pac and told him to go home and
rest; he’d be fine. A few days later Justin was still sick; he had flu-like symptoms
and a bad case of sore throat. This time Mom took him to St. Anthony Hospital’s emergency room and they promptly transferred him to Cardinal Glennon Children’s Hospital. By the time
Justin was diagnosed a week later with lemierre syndrome he was on a respirator and in a drug induced coma, running a fever of 107. He began bleeding internally and was placed on an ECMO machine that filters and cleans the blood. Amonth after being hospitalized Justin passed away.
“The doctors think it may have been caused by either a fight that broke his nose or some dental work he’d recently had done,” said Tammy. “But they’re not really sure.” Lemierre Syndrome, the Forgotten Disease, is a fast acting illness with flu-like symptoms, a severe sore throat and high fever [106 or more]. The fusobacteria embeds itself into the jugular vein and when it begins breaking down it spreads into the rest of the body, through the bloodstream, wreaking irreversible havoc, especially on the lungs or kidneys. Prior to 1936 the mortality rate for lemierre syndrome was 96%; after the widespread use of penicillin the disease was virtually wiped out. According to Tammy there have been only 120 cases in the last 100 years; however, in the last 5 to 6 years it is estimated that there will be 1000 cases every 10 to 15 years and today the cases of lemierre’s syndrome have risen to 100 deaths out of 1000 documented cases.
What’s truly sad is that the disease is curable, if diagnosed quickly with a simple throat swab in the doctor’s office and treated accurately with a simple dose of penicillin. Before Justin passed away Tammy began asking questions. She started with her own children’s pediatrician. “He pulled out this huge medical book,” she said. “And, looked it up. There was only one short paragraph about it without much information.”
That spurred Tammy on to find out more and to start blogging [an online journal]
at www.lemierresyndromjrodgers.blogspot.com about what happened to
Justin. She strongly believes that because physicians have been cutting back on the
use of penicillin to treat their patients it is causing this disease to resurface. She and
her family also decided to start the Justin E. Rodgers Foundation for Lemierres
Awareness, Inc., [JRFLA] in order to get the word out to other families about this
life threatening disease that is totally curable. Visit www.lemierresyndrom.com for
more information about the disease.
Tammy has also made it her mission to contact every doctor, every hospital, and
every healthcare facility in the US with information about lemierre syndrome. She
has already mailed out 750 letters to emergent care facilities across the US. She is
on a mission to save lives and does not plan to stop until she has made as many
healthcare professionals aware of this as possible.
The JRFLA has teamed up with Elaine Rosi Academy for Children’s fifth annual
golf tournament to be held Sept. 26, 2009 at the Sugar Creek Golf Course. There
is a 7 a.m. shotgun start, 4-person scramble [$99.95 per golfer] with golf pro shop
awards, cash awarded for first place in multiple flights, prizes for longest drive and
closest to pin, $25,000 hole in one prize, unlimited beer, soda and water, complimentary
grilled lunch buffet, optional skins games for $5 per golfer, raffles and
50/50s. For more information or to sign up call Tammy at 314-566-4970.
JRFLA is also holding a walkathon at Lions Park in Eureka October 17 at 10
a.m. There will be hotdogs and hamburgers available for purchase, anyone is invited
to come and walk and there will be silicone bracelets for sale. Watch the
Current’s Community Calendar for more information. Or visit www.lemierresyndromjrodgers.
blogspot.com for updates.
Thursday, September 3, 2009
1st Lemierre's Walk!!!!
Our first walk EVER will be in Eureka MO on Sat Oct 17th @ 10 am! Put it on your calendars now! ;0)
More details in the near future!
If you have an idea for something pertaining to our walk please email me @
Sunflwz2@yahoo.com
We will defiantly need Volunteers for this one! Thank you to everyone that has helped us!!
The first set of letters are going into the mail tomorrow to ALL of the Urgent Care Centers across the United States!
Next we will work on Physician's and Hospitals!
Thank you to everyone for their love and support!
We couldn't do this with out all of you!
Love,
Tammy
More details in the near future!
If you have an idea for something pertaining to our walk please email me @
Sunflwz2@yahoo.com
We will defiantly need Volunteers for this one! Thank you to everyone that has helped us!!
The first set of letters are going into the mail tomorrow to ALL of the Urgent Care Centers across the United States!
Next we will work on Physician's and Hospitals!
Thank you to everyone for their love and support!
We couldn't do this with out all of you!
Love,
Tammy
Saturday, August 15, 2009
NEW Decals are in
I ordered new decals that say
"My son's Dr. had never
heard of Lemierre's. Has yours?
www.lemierresyndrome.com"
OR
"My daughter's Dr. had never heard
of Lemierre's. Has your?
www.lemierresyndrome.com"
If you would be interested in one of these decals for you car window or anywhere else please email me your name address and which one you would like and I will pop it in the mail to you.
sunflwz2@yahoo.com
THANK YOU!
Tammy Valencia
"My son's Dr. had never
heard of Lemierre's. Has yours?
www.lemierresyndrome.com"
OR
"My daughter's Dr. had never heard
of Lemierre's. Has your?
www.lemierresyndrome.com"
If you would be interested in one of these decals for you car window or anywhere else please email me your name address and which one you would like and I will pop it in the mail to you.
sunflwz2@yahoo.com
THANK YOU!
Tammy Valencia
Monday, August 10, 2009
THANK YOU TO ALL OUR SUPPORTERS!
I just have to type up a special "THANK YOU" to everyone that has helped & supported us! We could not continue this fight with out all of you!
I receive at least 5 to 6 emails a WEEK from mom's, dad's, aunt's, uncle's, brother's and sometimes the young people them self that have dealt with this disease! For those Dr.s who say this disease is still rare and only a one in a million change of getting I would like them to contact me. There is no way that is true with all of the emails and stories I receive.
We have received many donations from people all around the world and the people purchasing the ribbons, wrist bands and T shirts are a huge help to!!
We are just at the very beginning of our fight but it is a MUCH needed fight! I can't help but think that there are many more families that have lost their loved ones to this disease and do not even know it! It hides behind so many illnesses and takes so much to diagnose it is insane. You think it's 2009 they know about everything but they don't!
I want to Thank You to these companies that have either donated to us or helped us in any other way! FIRST ONE IS HIDDEN VALLEY in Eureka MO.
When Amity approached us to have the "J-Rod Jam" we were in shock! It turned out to be the best fundraiser I have ever been to! Everyone there especially Amity were amazing!
and at the J-Rod Jam helping us were the following companies:
Monster http://www.monsterenergy.com/
SOKA http://www.sokaskate.com/
Fox Creek Outfitters http://www.foxcreekstl.com/
US Cellular http://www.uscellular.com/
105.7 the point http://www.1057pointthepoint.com/
Z107.7 http://www.z1077.com/
And Kelly Corday with the amazing phone interview on the radio! http://www.y98.com/
Automotive Leasing Corporation also known as Ackerman Auto Plaza http://www.ackermanauto.com/
ALSO a BIG Thank you to Carousel Chocolates www.carousel-chocolates.com
This is my Uncle's company and all his sales from his AMAZING Chocolates goes to our Non Profit.
We have had some great donations for the Golf Tournament and I will list those companies as soon as I have all the information together! Thank you again to everyone!
Because of all the funding we have received so far we are going to start sending letters to EVERY Urgent Care and Doctor office in the United States. I know this disease is WORLD wide but we have to start small. If I take on the whole world I will get too over-whelmed. ;0)
Thank you to Brent!!!! Because of Brent Walquist with Beta Media Group in New York City we now have a Banner with our name and website on it to use at all of our events! Thank you Brent for your donation!
There are so many other people out there helping us Thank you Thank you Thank you!
Dr Robert Centor not only devotes his career to help teach Dr.s about this disease he also supports us as well! Thank you Dr. Centor http://www.medrants.com/ I hope one day we can meet in person!
Love, Tammy
I receive at least 5 to 6 emails a WEEK from mom's, dad's, aunt's, uncle's, brother's and sometimes the young people them self that have dealt with this disease! For those Dr.s who say this disease is still rare and only a one in a million change of getting I would like them to contact me. There is no way that is true with all of the emails and stories I receive.
We have received many donations from people all around the world and the people purchasing the ribbons, wrist bands and T shirts are a huge help to!!
We are just at the very beginning of our fight but it is a MUCH needed fight! I can't help but think that there are many more families that have lost their loved ones to this disease and do not even know it! It hides behind so many illnesses and takes so much to diagnose it is insane. You think it's 2009 they know about everything but they don't!
I want to Thank You to these companies that have either donated to us or helped us in any other way! FIRST ONE IS HIDDEN VALLEY in Eureka MO.
When Amity approached us to have the "J-Rod Jam" we were in shock! It turned out to be the best fundraiser I have ever been to! Everyone there especially Amity were amazing!
and at the J-Rod Jam helping us were the following companies:
Monster http://www.monsterenergy.com/
SOKA http://www.sokaskate.com/
Fox Creek Outfitters http://www.foxcreekstl.com/
US Cellular http://www.uscellular.com/
105.7 the point http://www.1057pointthepoint.com/
Z107.7 http://www.z1077.com/
And Kelly Corday with the amazing phone interview on the radio! http://www.y98.com/
Automotive Leasing Corporation also known as Ackerman Auto Plaza http://www.ackermanauto.com/
ALSO a BIG Thank you to Carousel Chocolates www.carousel-chocolates.com
This is my Uncle's company and all his sales from his AMAZING Chocolates goes to our Non Profit.
We have had some great donations for the Golf Tournament and I will list those companies as soon as I have all the information together! Thank you again to everyone!
Because of all the funding we have received so far we are going to start sending letters to EVERY Urgent Care and Doctor office in the United States. I know this disease is WORLD wide but we have to start small. If I take on the whole world I will get too over-whelmed. ;0)
Thank you to Brent!!!! Because of Brent Walquist with Beta Media Group in New York City we now have a Banner with our name and website on it to use at all of our events! Thank you Brent for your donation!
There are so many other people out there helping us Thank you Thank you Thank you!
Dr Robert Centor not only devotes his career to help teach Dr.s about this disease he also supports us as well! Thank you Dr. Centor http://www.medrants.com/ I hope one day we can meet in person!
Love, Tammy
Tuesday, July 21, 2009
Golf Tournament Sat Sept 26th
We have all the details for our Golf Tournament!!!
It will be held Sat Sept 26th @ 7:00am, (Shotgun Start) at the Sugar Creek Golf Course in Fenton MO.
There will be Golf Pro Awards, Cash Awards for 1st place in multiple flights, Prizes for longest drive & closest to pin, $25,000 hole in one prize, Unlimited Beer, Soda, Water, A Grilled lunch, Optional Skins game for $5 per golfer, Prize Raffle and 50/50 Raffle all of this for only $99.95.
I have uploaded the information sheet as well as the sign up sheet to the right of this post. Please right click on them and select print picture. Please pass around to every golfer you know. This will be lots of fun and you are helping 2 organizations!
If you would like more information please email me.
sunflwz2@yahoo.com
Thank you!!
Love, Tammy
It will be held Sat Sept 26th @ 7:00am, (Shotgun Start) at the Sugar Creek Golf Course in Fenton MO.
There will be Golf Pro Awards, Cash Awards for 1st place in multiple flights, Prizes for longest drive & closest to pin, $25,000 hole in one prize, Unlimited Beer, Soda, Water, A Grilled lunch, Optional Skins game for $5 per golfer, Prize Raffle and 50/50 Raffle all of this for only $99.95.
I have uploaded the information sheet as well as the sign up sheet to the right of this post. Please right click on them and select print picture. Please pass around to every golfer you know. This will be lots of fun and you are helping 2 organizations!
If you would like more information please email me.
sunflwz2@yahoo.com
Thank you!!
Love, Tammy
Saturday, June 20, 2009
Happy Father's Day!
Just wanted to wish all the fathers out there a "Happy Father's Day"! I hope every one has a great relaxing day!
We have a few events that we will begin working on for Sept. First is our first Lemierre's Walk! This will be sometime in the middle of Sept., I'm not 100% sure on the date yet. The next is a Golf Tournament we were asked to be a part of. This will be held Sept 26th at the Sugar Creek Golf Course located near Fenton. This is going to be a fun event for anyone that golfs. There will be great prizes!! Food and drinks included in the price to participate. There will be teams of 4 so if you and 3 your friends want to join in let me know! Or just you we can always pair you up with others. IF you would like a flyer for this event please email me @ sunflwz2@yahoo.com. I will post the flyer for this event on this site as soon as I have it ready. I will begin sending out letters for donations to local stores or businesses for items like bottle waters or anything else they would like to donate to us for these events. If you know of a business or you your self would like to donate please email me @ sunflwz2@yahoo.com. I will make a large banner with all of our supporters names on it. We appreciate everything everyone has done for this Corporation!
Love,
Tammy
We have a few events that we will begin working on for Sept. First is our first Lemierre's Walk! This will be sometime in the middle of Sept., I'm not 100% sure on the date yet. The next is a Golf Tournament we were asked to be a part of. This will be held Sept 26th at the Sugar Creek Golf Course located near Fenton. This is going to be a fun event for anyone that golfs. There will be great prizes!! Food and drinks included in the price to participate. There will be teams of 4 so if you and 3 your friends want to join in let me know! Or just you we can always pair you up with others. IF you would like a flyer for this event please email me @ sunflwz2@yahoo.com. I will post the flyer for this event on this site as soon as I have it ready. I will begin sending out letters for donations to local stores or businesses for items like bottle waters or anything else they would like to donate to us for these events. If you know of a business or you your self would like to donate please email me @ sunflwz2@yahoo.com. I will make a large banner with all of our supporters names on it. We appreciate everything everyone has done for this Corporation!
Love,
Tammy
Friday, May 15, 2009
lemierresyndrome.com is # 3 !!!!
I just googled Lemierre Syndrome and out of 20,600 search results our website comes up 3rd!! That's amazing!!!
From what I read on his website Michael has been released from the hospital you can read about his recent surgery @ http://www.prayformichael.com/
Also I have had 2 cases emailed to me this week. One is a 4 yr old boy! I told both of their family's our thoughts and prayers are with them.
I received the short sleeve T Shirts yesterday so they are in and ready to be purchased! ;0)
Thank you everyone!
MUCH LOVE,
Tammy
From what I read on his website Michael has been released from the hospital you can read about his recent surgery @ http://www.prayformichael.com/
Also I have had 2 cases emailed to me this week. One is a 4 yr old boy! I told both of their family's our thoughts and prayers are with them.
I received the short sleeve T Shirts yesterday so they are in and ready to be purchased! ;0)
Thank you everyone!
MUCH LOVE,
Tammy
Sunday, May 10, 2009
Happy Mother's Day
I hope all mothers had a great day today! I hope all children were nice to their moms! ;0)
We went to the cemetery to visit my mom's mom, my 2 sisters Mandy & Ashley and my lil bro Justin. Then we all went back to my house and my sister and I made dinner for everyone.
It is so hard to believe just 1 year ago today Justin's battle ended and our battle began! I feel like this year has gone by so fast however I feel like it has been so long since I've seen or talked to my little brother. It feels like just yesterday I was going to sleep scared out of my mind that my phone was going to ring any min and tell me to come say goodbye. Tonight it has been exactly 1 year since I left the hospital feeling so helpless and scared. And at 2 am it will be exactly 1 year that my mom called and told me it's time. May 12th will always be the happiest day of my life as well as the saddest. It is the day I married my best friend as well as the day (one year later) I lost my little brother.
To me May 12 is my little brother's 1 year anniversary of receiving his wings so I feel privileged to be able to share that special day as my wedding anniversary as well.
We have come so far and met so many people in the last year. We have so much more to do and so many more Dr.'s to teach and get in front of to help us fight this disease. All we can do right now is talk and hand out brochures and teach everyone we know. We have been told by many people that we need to get this in front of Oprah! ;0) That would be amazing if we could catch her eye. Maybe one day we will. Thank you to everyone for helping us along the way! I have had so many people ask me how they can help and all we can do right now is talk talk talk. Pass out brochures, try to get Doctors involved and help us spread the word! Lemierre's Syndrome is what the CDC concider a "Orphan disease"
A disease which has not been "adopted" by the pharmaceutical industry because it provides little financial incentive for the private sector to make and market new medications to treat or prevent it.
An orphan disease may be:
A rare disease. According to US criteria, an orphan disease is one that affects fewer than 200,000 people. (There are more than 5,000 such rare disorders.)
A common disease that has been ignored (such as tuberculosis, cholera, typhoid, and malaria) because it is far more prevalent in developing countries than in the developed world. (www.medterms.com)
I'm not really sure what we can do to get this disease in front of their face and make them see it is coming back and Doctors right now do not know enough about it to stop it.
I have emailed them 4 times in the last few months so maybe if we all shoot an email to them putting Lemierre's in front of their face and make them see we need to teach Doctors about this disease! All we can do is try and it is something that only takes a few min. www.cdc.gov
Thank you!
Love,
Tammy
We went to the cemetery to visit my mom's mom, my 2 sisters Mandy & Ashley and my lil bro Justin. Then we all went back to my house and my sister and I made dinner for everyone.
It is so hard to believe just 1 year ago today Justin's battle ended and our battle began! I feel like this year has gone by so fast however I feel like it has been so long since I've seen or talked to my little brother. It feels like just yesterday I was going to sleep scared out of my mind that my phone was going to ring any min and tell me to come say goodbye. Tonight it has been exactly 1 year since I left the hospital feeling so helpless and scared. And at 2 am it will be exactly 1 year that my mom called and told me it's time. May 12th will always be the happiest day of my life as well as the saddest. It is the day I married my best friend as well as the day (one year later) I lost my little brother.
To me May 12 is my little brother's 1 year anniversary of receiving his wings so I feel privileged to be able to share that special day as my wedding anniversary as well.
We have come so far and met so many people in the last year. We have so much more to do and so many more Dr.'s to teach and get in front of to help us fight this disease. All we can do right now is talk and hand out brochures and teach everyone we know. We have been told by many people that we need to get this in front of Oprah! ;0) That would be amazing if we could catch her eye. Maybe one day we will. Thank you to everyone for helping us along the way! I have had so many people ask me how they can help and all we can do right now is talk talk talk. Pass out brochures, try to get Doctors involved and help us spread the word! Lemierre's Syndrome is what the CDC concider a "Orphan disease"
A disease which has not been "adopted" by the pharmaceutical industry because it provides little financial incentive for the private sector to make and market new medications to treat or prevent it.
An orphan disease may be:
A rare disease. According to US criteria, an orphan disease is one that affects fewer than 200,000 people. (There are more than 5,000 such rare disorders.)
A common disease that has been ignored (such as tuberculosis, cholera, typhoid, and malaria) because it is far more prevalent in developing countries than in the developed world. (www.medterms.com)
I'm not really sure what we can do to get this disease in front of their face and make them see it is coming back and Doctors right now do not know enough about it to stop it.
I have emailed them 4 times in the last few months so maybe if we all shoot an email to them putting Lemierre's in front of their face and make them see we need to teach Doctors about this disease! All we can do is try and it is something that only takes a few min. www.cdc.gov
Thank you!
Love,
Tammy
Friday, May 1, 2009
Another family in mourning
There has been another loss of a young handsome man by then name of Kegan. His family is now trying to understand what happened as we were just about 1 year ago. From the pictures that I have seen Kegan and Justin had a lot in common. They both were so young and so full of life!
The family gave permission to run an article in their home town newspaper, the Justin E Rodgers Foundation is mentioned a few times!
Thank you so much for helping us get this word out!
http://memphisdemocrat.com/2009/news/090430_hunt.shtml
I spoke with Dr. Centor earlier this week. We are going to be working together and coming up with a way to promote our website and get our name out there and help Dr.'s become more aware!
Tonight is our "A Life to Remember" Prom in Justin's name! I hope everything goes well and I'm sure he will be there with us!
We love you little brother and please help Kegan's family! They need all the love and support they can get right now!
Love,
Tammy
The family gave permission to run an article in their home town newspaper, the Justin E Rodgers Foundation is mentioned a few times!
Thank you so much for helping us get this word out!
http://memphisdemocrat.com/2009/news/090430_hunt.shtml
I spoke with Dr. Centor earlier this week. We are going to be working together and coming up with a way to promote our website and get our name out there and help Dr.'s become more aware!
Tonight is our "A Life to Remember" Prom in Justin's name! I hope everything goes well and I'm sure he will be there with us!
We love you little brother and please help Kegan's family! They need all the love and support they can get right now!
Love,
Tammy
Monday, April 20, 2009
One year ago
Our battle with this disease was just beginning. We had no idea what we were in for.
It really feels like just yesterday all of this happened. I feel like just yesterday I was telling my little brother when he was first admitted to the hospital "All of this to get out of School." Just kidding of course! I also teased him by not wanting to kiss him goodbye because I didn't want to get what he had and pass it along to my 6 week old. MAN DO I REGRET THAT!!! Because that was the last time I ever got to talk to him again!
We have gone from never hearing of Lemierre's, to dealing with it first hand, to trying to find information and research it online, to dealing with the aftermath, to starting a non profit to help others learn about it. All in one year. I can not believe all the emails I get from people all over the world not just the US but the world that have been affected by Lemierre's in some way.
I do want to thank all of you that send me your stories, comments and especially the questions. I would still believe everything on the Internet about this being such a rare disease if it wasn't for all of you who have shared your stories with me. I no longer believe this is a rare disease I know believe this is a disease that Dr's and so many other people out there have never heard of. And they want to learn everyone always asks me the same questions, what are the symptoms?, what is it?, what does it do to your body and how do you get it? Now we can answer all of those questions and more on our new website. lemierresyndrome.com
Shortly we will be working with Dr. Centor. He has years and years of knowledge about this disease and he is willing to share what he can with us to fight this thing and teach Dr.'s about it so it can be diagnosed and treated faster.
We have lots of fundraising events planned one of them is just next week. It is not really a fundraiser just a way to remember Justin close to the one year anniversary of when he received his angel wings! We are having a Benefit Dinner / Prom. Anyone in the St. Louis area is still welcome to come please email me. The cost is $30 per person.
Hopefully we will be holding a Lemierre's walk sometime in Sept maybe around his birthday, we have a golf outing planned for Sept too!
I will keep all of our events updated on the Contact Us / Events page at lemierresyndrome.com
It really feels like just yesterday all of this happened. I feel like just yesterday I was telling my little brother when he was first admitted to the hospital "All of this to get out of School." Just kidding of course! I also teased him by not wanting to kiss him goodbye because I didn't want to get what he had and pass it along to my 6 week old. MAN DO I REGRET THAT!!! Because that was the last time I ever got to talk to him again!
We have gone from never hearing of Lemierre's, to dealing with it first hand, to trying to find information and research it online, to dealing with the aftermath, to starting a non profit to help others learn about it. All in one year. I can not believe all the emails I get from people all over the world not just the US but the world that have been affected by Lemierre's in some way.
I do want to thank all of you that send me your stories, comments and especially the questions. I would still believe everything on the Internet about this being such a rare disease if it wasn't for all of you who have shared your stories with me. I no longer believe this is a rare disease I know believe this is a disease that Dr's and so many other people out there have never heard of. And they want to learn everyone always asks me the same questions, what are the symptoms?, what is it?, what does it do to your body and how do you get it? Now we can answer all of those questions and more on our new website. lemierresyndrome.com
Shortly we will be working with Dr. Centor. He has years and years of knowledge about this disease and he is willing to share what he can with us to fight this thing and teach Dr.'s about it so it can be diagnosed and treated faster.
We have lots of fundraising events planned one of them is just next week. It is not really a fundraiser just a way to remember Justin close to the one year anniversary of when he received his angel wings! We are having a Benefit Dinner / Prom. Anyone in the St. Louis area is still welcome to come please email me. The cost is $30 per person.
Hopefully we will be holding a Lemierre's walk sometime in Sept maybe around his birthday, we have a golf outing planned for Sept too!
I will keep all of our events updated on the Contact Us / Events page at lemierresyndrome.com
Justin I heard a song the other day, of course by Rascal Flatts you know me I love them!! ;0) Anyway it had the most perfect lyrics every single word they sang reminded me of you and how much we MISS and LOVE you!!!! I won't type out the whole song but I have to tell you this one part! I'm sure you have heard me sing it to you a million times already! The name of the song is "Forever" there are about 4 other songs on their album that remind me soo much of you
"I miss you so much, your light, your smile your way & everything about us! Though your gone, your still here, in my heart in my tears. Yeah you sure left your mark you were just getting started. It wasn't long enough together but it was long enough to last forever! "
Love to all!
Tammy
Sunday, April 12, 2009
Happy Easter
Happy Easter everyone!!
This was the last Holiday we had with Justin.
Justin went to the hospital April 16th last year.
I remember telling my mom that he will be ok, he just needs some rest and good meds. Thinking he had pneumonia but I knew after just 2 days something was seriously wrong!
So much has happened since then.
I received our official noticed from the IRS we are a 501 (c) (3) non profit corporation.
Thank you to everyone that has supported us and helped get our name out there.
Speaking of the website we have a NEW ONE!!!!!!
www.lemierresyndrome.com
Pass it around to everyone.
I have received 4 new Lemierre's stories in the past 2 weeks. A few of them were at least 2 hours away from St. Louis. Thank you so much for sharing your stores and experience with me.
If you want to come to our first benefit dinner May 1st please send me your address!
sunflwz2@yahoo.com
Thank you!
Love,
Tammy
We will never forget you baby brother! We will always love you and you will always be in our heart. Cruz told me the other day he misses you and I told him to talk to you that you listen you just can't talk back. He says he can't wait to see you again!! Allen reminds Cruz of all the fun times you had like last year at Grandma and Grandpa's @ Easter wrestling around. And bugging you when you had all your friends over. We all can't wait to see you again. WE LOVE YOU
love your big sister!
This was the last Holiday we had with Justin.
Justin went to the hospital April 16th last year.
I remember telling my mom that he will be ok, he just needs some rest and good meds. Thinking he had pneumonia but I knew after just 2 days something was seriously wrong!
So much has happened since then.
I received our official noticed from the IRS we are a 501 (c) (3) non profit corporation.
Thank you to everyone that has supported us and helped get our name out there.
Speaking of the website we have a NEW ONE!!!!!!
www.lemierresyndrome.com
Pass it around to everyone.
I have received 4 new Lemierre's stories in the past 2 weeks. A few of them were at least 2 hours away from St. Louis. Thank you so much for sharing your stores and experience with me.
If you want to come to our first benefit dinner May 1st please send me your address!
sunflwz2@yahoo.com
Thank you!
Love,
Tammy
We will never forget you baby brother! We will always love you and you will always be in our heart. Cruz told me the other day he misses you and I told him to talk to you that you listen you just can't talk back. He says he can't wait to see you again!! Allen reminds Cruz of all the fun times you had like last year at Grandma and Grandpa's @ Easter wrestling around. And bugging you when you had all your friends over. We all can't wait to see you again. WE LOVE YOU
love your big sister!
Wednesday, April 8, 2009
Short Sleeve T Shirts
I am going to be placing an order for Short Sleeve T Shirts next week. They will be the same design as the long sleeve ones.
They are $8 for S - XL and $9.50 for XXL and up. You can us our paypal check out here in our website or you can mail me a check. If you will be mailing me a check please email me and I will send you my mailing address. I am also going to drop the price of the Long Sleeve T-shirts to $11.00.
THANK YOU!!
LOVE,
Tammy Valencia
They are $8 for S - XL and $9.50 for XXL and up. You can us our paypal check out here in our website or you can mail me a check. If you will be mailing me a check please email me and I will send you my mailing address. I am also going to drop the price of the Long Sleeve T-shirts to $11.00.
THANK YOU!!
LOVE,
Tammy Valencia
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