tag:blogger.com,1999:blog-52113232202824907022024-03-06T14:03:53.866-06:00Justin's battle with Lemierre's SyndromeThis blog was created for the awareness of Lemierre Syndrome in memory of Justin Rodgers. This is a very serious disease. It's starting to make it's way back into the public. Everyone (including Drs) need to be more aware of it!
** Warning some pictures and blogs on this site may be graphic.
Even if you have been to this site 100 times please scroll all the way down. I add new things through out the page all the time.
For more info on Lemierre's visit www.lemierresyndrome.comTammyhttp://www.blogger.com/profile/14779555261527367891noreply@blogger.comBlogger112125tag:blogger.com,1999:blog-5211323220282490702.post-85868556775974278042014-07-29T11:02:00.004-05:002014-07-29T11:02:59.444-05:00Free ticket to those affected by Lemierres! We have a little less than 1 month before we have to pay the Cardinals for the tickets they gave us. <br />
Last night we had a thought...... <br />
We want everyone in or around St. Louis that has had to deal with this HORRIBLE disease to join us on Lemierre's Awareness night @ Busch Stadium!!! Sat. Sept 13th @ 6:15pm<br />
If you are a Lemierre's Survivor we want you to be there! If you have lost someone to Lemierre's we want you to be there! <br />
Please get in contact with me ASAP (before we sell out) to get your ticket!!! We will give 1 ticket to the survivor of Lemierre's! We will also give 1 ticket (per family) to those that have lost someone to Lemeirre's. Email me @ <a href="mailto:JERFOUNDATION@YAHOO.COM">JERFOUNDATION@YAHOO.COM</a> <br />
If you are seeing this and are around the St. Louis area and know someone that was affected by this disease please tell them to contact me! We want them to be there with us! <br />
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Tammyhttp://www.blogger.com/profile/14779555261527367891noreply@blogger.com0tag:blogger.com,1999:blog-5211323220282490702.post-69851135664159971572014-07-03T00:06:00.001-05:002014-07-03T00:06:29.259-05:00I never thought I would see that room again. Today was a very productive day! We went to 8 Hospitals and Urgent Cares and made contact with hundreds of Dr's and Nurses! The last stop was one of the hardest and it did not go as well as I thought it would. We went to the hospital that Justin was in. I thought it was going to be just as the others. Walk in, explain who we are and what we are doing and leave the items. But I felt a tug at my heart. I asked to speak with a lady that was there during Justin's stay and who's personal life we have helped during our fight. Mrs. Mary came out to say hi and welcomed us by bringing over one of Justin's Dr's. It brought back a flood of feelings seeing him and being in that hospital again. You would think it would be sad, depressing feelings but for me it was proud, acceptance, love and a feeling that our family choose to do the right thing after Justin passed. We could have just went on with our broken lives but we decided to stand up and not let his memory go! We decided to stand up and fight and being there today showed me that we are doing the right thing! His Dr showed us around the new PICU unit and how so many things are changing. (It is not even open yet.) Everyone we ran into on that floor he would say "Do you remember Justin Rodgers?" It would take the person a minute but everyone he asked said yes they did! Then he would continue to tell them who we were, why we were there today and to let all the new staff members know that we left items in the break room to teach them about Lemierre's. His words were "Let them know about Justin's story. Make sure all the new staff members know about Lemierre's." As he was showing us the new PICU unit we went through the same doors that we went through May 12th 2008, 6 years ago, to say goodbye. We walked down the same hall as we did 6 years ago that night, then before I could even realize it we were standing in front of the same room that we stood in 6 years ago and watched my 17 year old, full of life before Lemierre's, brother fight a disease that not many people knew about. As soon as I did realize it was that room I felt really proud of how far my family has come and how strong my family is for going through everything we went through. I am very lucky to be a part of this family. We are strong and extremely close and not everyone can say that about their family. I receive emails all the time from family members fighting this disease I never thought when we started this Foundation it would come this far. I thought maybe it would last a few years, we would hit a dead end and that is it. It has gone so much further than I think any of us thought. In the past 7 days 1,500 people have viewed our site. <a href="http://www.lemierresyndrome.com/">www.lemierresyndrome.com</a> We've spoken to so many Dr.'s & Nurses and they actually look to us for answers. This Foundation or "Idea" that was given to us has been a blessing. I can only speak for myself not my other family members but it has helped me in my grieving process too. <br />
Thank you for all the love and support everyone of you have given us in the past 6 years! I hope and Pray this only gets bigger from here and one day everyone will know about Lemierre's just like they know about the other Infectious Diseases out there. Tammyhttp://www.blogger.com/profile/14779555261527367891noreply@blogger.com0tag:blogger.com,1999:blog-5211323220282490702.post-13980240387734931492014-06-29T23:05:00.001-05:002014-06-29T23:05:47.524-05:00Baskets for Awareness!!!! <div class="separator" style="clear: both; text-align: center;">
Look what we did today!!! These baskets full of goodies are now available for you to take into a local Hospital, Urgent Care or Physician's office in your area! The only thing we ask is that you help us by paying for the shipping for us to get it to you! $11.00 for 2! We will put the basket together and ship it to you. Then you take it to the hospital or Urgent Care of your choice and tell them you are there to drop these items of for the Dr's or Nurses. Ask the receptionist to place the basket in the Break Room for the Dr's. Each Basket will contain a few of the following items:</div>
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Water Bottles</div>
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Sun Tan Lotion & SPF Lip balm key chain</div>
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Hand Sanitizer</div>
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Wrist Bands</div>
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"Life Savers"</div>
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Med. size pads of paper</div>
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Smaller size pads of paper</div>
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Biz Cards and or Pamphlets</div>
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A portfolio explaining Lemierre's and who we are.</div>
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To order these baskets go to our Paypal section and select the # you would like us to send you. </div>
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They will come in Qty of 2's. So if you want 6 baskets you need to enter 3. </div>
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The total for 6 baskets will be $33.00.</div>
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We will mail you the 6 baskets and you take them into the Facilities of your choice. </div>
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Your Dr's office</div>
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Your child's Dr's office</div>
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The Urgent Care in your area</div>
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Hospital in your area</div>
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<br />Tammyhttp://www.blogger.com/profile/14779555261527367891noreply@blogger.com0tag:blogger.com,1999:blog-5211323220282490702.post-34485798098185243112014-04-09T23:21:00.003-05:002014-04-09T23:21:58.446-05:00Another Fundraiser being held for us in Valencia, CAIf you are around Valencia, CA you should stop by and say hi and support a great cause!<br />
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I was contacted by Mona a few weeks ago because her son, who had Lemierre's, wanted to hold a fundraiser for us at his baseball field! <br />
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Lemierre’s Syndrome Awareness Fundraiser, during the USSSA Sponsored Spring Break Showcase this Saturday, April 12<sup>th</sup>, at the Wm S. Hart Pony Baseball and Softball Complex.<span> </span>The fundraiser will be conducted from 10am – 6pm.<br />
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This is just amazing! 2 families within 1 week holding fundraisers for us!!! <br />
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I really appreciate all everyone does to support us and get the word out about this disease! Tammyhttp://www.blogger.com/profile/14779555261527367891noreply@blogger.com0tag:blogger.com,1999:blog-5211323220282490702.post-49642756032736815932014-04-07T08:46:00.002-05:002014-04-07T08:46:33.706-05:00Today is the day for the fundraiser in CA!!!!!I hope you all have lots of fun!!! I just wanted to give one last push for anyone in this area to stop by a support a GOOD cause!!! Make sure and say hi to Michael for me!!!!! <br />
xoxoxox See the flyer below for more info!!!! <br />
Tammyhttp://www.blogger.com/profile/14779555261527367891noreply@blogger.com0tag:blogger.com,1999:blog-5211323220282490702.post-68734549123083550112014-03-08T01:06:00.003-06:002014-03-08T01:06:59.292-06:00Attention ALL readers in Petaluma, California! There is an Fundraiser / Awareness event being held for Lemierres IN California!!! <br />
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Tammyhttp://www.blogger.com/profile/14779555261527367891noreply@blogger.com2tag:blogger.com,1999:blog-5211323220282490702.post-12072654990336088352013-09-28T19:52:00.000-05:002013-09-28T19:52:06.762-05:00Little Zack! Prayers are needed for 15 year old Zack here in St. Louis. He was diagnosed with lemierre's yesterday!Tammyhttp://www.blogger.com/profile/14779555261527367891noreply@blogger.com2tag:blogger.com,1999:blog-5211323220282490702.post-42840568364369139682013-09-03T12:31:00.000-05:002013-09-03T12:31:15.818-05:00Cardinals tickets - Sept 29thWe have 50 tickets left for the Cardinals vs Cubs game Sunday Sept 29th at 1:15pm. This is Lemierres Awareness Day at Busch Stadium! These tickets are $20 each and you will receive a voucher for a free game for next year as well. So you are paying $20 for 2 Cardinal's games! We will be throwing out the first pitch and teaching over 25,000 people about Lemierre's! Come help us! <br />
Tammyhttp://www.blogger.com/profile/14779555261527367891noreply@blogger.com0tag:blogger.com,1999:blog-5211323220282490702.post-30083260871336875582013-08-07T19:07:00.000-05:002013-08-07T19:07:38.336-05:00Lemierrie's Awareness day at Busch Stadium!!!!<span class="userContent" data-ft="{"tn":"K"}">I am so excited! Lemierre's Awareness night at Busch Stadium is a GO!!!! We are selling tickets to the Cards vs Cubs game at 1:15pm on SUNDAY Sept 29 (last home game of the season), how perfect the day after Justin's Birthday!!!! This is NOT a fundraiser we are doing this for awareness! If we sell 500 tickets they will announce our non profit and Lemierre's AND someone will get to throw out the first pitch on our behalf!!!! These tickets are in Section 228 -231 face value of $44 and we are selling them for $20!!! Email us and I will give you more details. You can barely even PARK at the game for $20 this is an amazing steal!</span><br />
<span class="userContent" data-ft="{"tn":"K"}"></span><br />
<span class="userContent" data-ft="{"tn":"K"}"><a href="mailto:JERFoundation@yahoo.com">JERFoundation@yahoo.com</a></span>Tammyhttp://www.blogger.com/profile/14779555261527367891noreply@blogger.com0tag:blogger.com,1999:blog-5211323220282490702.post-41454731419055661582013-04-25T11:50:00.001-05:002013-04-25T11:50:19.819-05:00
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<span style="font-family: Calibri;">It's been 5 years since my little (bigger than me) brother
fell sick with this disease!<span style="mso-spacerun: yes;"> </span>I remember
being so confused and scared and thinking "no way God would do this to my
family again!" You see I had lost 2 sisters at a very young age from
different events.<span style="mso-spacerun: yes;"> </span>So when I got the call
to come say my final goodbye to my 17 year old FULL of life brother I just
couldn't believe it!<span style="mso-spacerun: yes;"> </span>I remember thinking
when I walked in his room and saw everyone crying and upset, thinking what the
HELL is going on!<span style="mso-spacerun: yes;"> </span>He is going to be fine!
You all are wrong! And then he took his last breath.<span style="mso-spacerun: yes;"> </span>He waited for me to get there to say
goodbye!<span style="mso-spacerun: yes;"> </span>I will always be grateful for
that.<span style="mso-spacerun: yes;"> </span>He passed away on my 1 year
wedding anniversary and the day after mother's day!<span style="mso-spacerun: yes;"> </span>Spring time always tugs at my heart because
while everything else on this earth is coming to life and blooming my brother
was lying in a hospital bed dying!<span style="mso-spacerun: yes;"> </span>I had
to do something, my family wanted to share his story and I can't believe how
many other families out there have gone through this very thing and had to deal
with this disease!!<span style="mso-spacerun: yes;"> </span>But running this
foundation has been a HUGE help in dealing with the pain of losing him!<span style="mso-spacerun: yes;"> </span>My kids still talk about him and my 3 year
old looks and ACTS just like him!<span style="mso-spacerun: yes;"> </span>We
love you Justin and always will! <span style="mso-spacerun: yes;"> </span>I can't
wait to see you on the other side!<o:p></o:p></span></div>
Tammyhttp://www.blogger.com/profile/14779555261527367891noreply@blogger.com0tag:blogger.com,1999:blog-5211323220282490702.post-1887093064807091092013-04-25T11:25:00.001-05:002013-04-25T11:25:54.038-05:00
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<span style="font-family: Calibri;">I received 85 replies of dates and location of where the LS
patients are!!<span style="mso-spacerun: yes;"> </span>Thank you!!<span style="mso-spacerun: yes;"> </span>I am going to start pinning the map today I
ill post pictures when I am done!<span style="mso-spacerun: yes;"> </span>If you
have not yet let me know your location and year you were diagnosed with LS
please do ;0) If you already did please do not do it again.<span style="mso-spacerun: yes;"> </span>Thank you!!!<span style="mso-spacerun: yes;">
</span>If anyone is interested I have these wrist bands for sale $3.00
each.<span style="mso-spacerun: yes;"> </span>We accept PayPal only.<span style="mso-spacerun: yes;"> </span>xoxoxo<span style="mso-spacerun: yes;">
</span>Thank you everyone for helping us in our fight!<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
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Tammyhttp://www.blogger.com/profile/14779555261527367891noreply@blogger.com0tag:blogger.com,1999:blog-5211323220282490702.post-1729058019586488852013-02-12T14:16:00.005-06:002013-02-12T14:16:50.449-06:00New email address!!!Justin E Rodgers Foundation has a new email address!!!
if you want to contact us for any reason; share your story, ask a question, start a fundraiser ANYTHING email us at <br />
<a href="mailto:JERFoundation@yahoo.com">JERFoundation</a><a href="mailto:JERFoundation@yahoo.com">@yahoo.com</a>
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I created this email address so that the other officers of our non profit can check it and reply back to you all. That way it is not left 100% up to me! ;0)<br />
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Thank you!!!!Tammyhttp://www.blogger.com/profile/14779555261527367891noreply@blogger.com0tag:blogger.com,1999:blog-5211323220282490702.post-43322633039414874562013-01-03T19:11:00.000-06:002013-01-03T19:11:14.475-06:00Lemierre's Map
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<span style="font-family: Calibri;">I want to start a map and see where everyone is from that
has had Lemierre's.<span style="mso-spacerun: yes;"> I tried to keep track from all of your emails you have sent me but it just became to hard. ;0( </span></span></div>
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<span style="font-family: Calibri;"><span style="mso-spacerun: yes;"></span>If you yourself have
had Lemierre's please let me know the year you had it along city and state you
lived in at the time you had it.<span style="mso-spacerun: yes;"> </span>If you
are commenting for a friend or family member that had it please make sure they
did NOT already comment with this info.<span style="mso-spacerun: yes;">
</span>I don't want to double up on the info! ;0)<span style="mso-spacerun: yes;"> </span>For any friends or family that have had a
member of their family pass away due to Lemierre's please take a moment and let
me know this info for them.<span style="mso-spacerun: yes;"> </span></span></div>
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<span style="font-family: Calibri;"><span style="mso-spacerun: yes;"></span>Thank you
xoxoxox!<o:p></o:p></span></div>
I also have this posted to our facebook page so please do not comment in both places. <br />
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If you have not liked us yet on facebook please do so! AND share the page with all your friends. <br />
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Tammyhttp://www.blogger.com/profile/14779555261527367891noreply@blogger.com19tag:blogger.com,1999:blog-5211323220282490702.post-28972253064484320872012-12-07T12:06:00.000-06:002012-12-07T12:06:43.248-06:00Lemierre's on TV once again!!!It just makes me so happy every time I heard that a TV station or show has decided to do a segment on TV. Even if it is only 2 min long. There have been a handful of them that are actual real stories of people that I know battled this disease. The only wish I have is they would mention a little more how deadly this disease is and stop saying it's rare!! I have much proof to prove how UNRARE (is that a word LOL) it actually is. OH and maybe that they would mention our non profit! LOL that's not to much to ask is it !<br />
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On Animal Planet tonight 7pm there is a show called "Monsters inside me". <br />
The guy they are doing the segment on was an actual patient with Lemierre's and from what I read he is a DR. TOO!!! <br />
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Here is the link to the story if you would like to read it. <br />
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<a href="http://www.pe.com/local-news/san-bernardino-county/san-bernardino-county-headlines-index/20121205-colton-doctor-former-patient-to-be-on-tv.ece">http://www.pe.com/local-news/san-bernardino-county/san-bernardino-county-headlines-index/20121205-colton-doctor-former-patient-to-be-on-tv.ece</a><br />
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I was really bumbed and thought I was going to miss it because we have to go to Cruz's school from 6-8 BUT I saw that is will replay at 10pm!!! SO I will get to see it! These times are our times so please check your station to see when it plays for you. <br />
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<br />
xoxoxo<br />
Tammyhttp://www.blogger.com/profile/14779555261527367891noreply@blogger.com0tag:blogger.com,1999:blog-5211323220282490702.post-90079553025172580202012-12-04T15:56:00.000-06:002012-12-04T15:56:26.585-06:00Awaness items on sale!!!All of our awareness items will be 50% off for the month of Decemeber!!!<br />
Happy Holidays!!!! <br />
<br />
xoxoxo<br />
Tammy Tammyhttp://www.blogger.com/profile/14779555261527367891noreply@blogger.com0tag:blogger.com,1999:blog-5211323220282490702.post-33698345671190632002012-09-28T20:36:00.000-05:002012-09-28T20:36:02.190-05:00Happy Birthday Justin!Every year on this date I wonder what we would be doing if you were still here! <br />
The boys wanted to go to the cemetery today but we will stop by tomorrow. <br />
I hope we meet our goal tomorrow at your Trivia Night! We've worked so hard on this event and so many people have helped us get to where we are! I pray that this medical research really helps us better understand this disease and help Dr's better understand it as well! <br />
I knew the second I got that phone call to hurry to the hospital and come say goodbye that I was not going to let you die and not do something about it. I had to do something, we were so misinformed and I do not want any other family to feel that way! There was nothing on the Internet to help us understand what you were going through and now because of you and your story there is! We can warn people of how serious this really is and what steps to take and it's all because of you! We had to lose you in order to do this. I know that now but I can tell you though I don't like it I understand. <br />
Antonio knows your name and face but I wish he knew YOU. Kristiana will look at me sometimes and say, "Mom uncle Justin held me when I was a baby and he loved me." He sure did is all I can say back to her. You use to make me so made before you got sick. But now I know you were just being a teenager and I know I'm in for the same crap with Allen, Cruz, Kristiana and Antonio! Especially Antonio. He is our little Justin all over!<br />
OH and guess what! You know how we fought about Mike and him playing for Nebraska and how you said Nebraska stinks!! Well he made it onto the Rams!! SOOO NAH! In your face!!! <br />
<br />
We love you with our entire hearts and we will see you again! <br />
<br />
xoxoxoxoxo<br />
Tammy, Tony, Allen, Cruz, Kristiana and AntonioTammyhttp://www.blogger.com/profile/14779555261527367891noreply@blogger.com1tag:blogger.com,1999:blog-5211323220282490702.post-74777699738321393642012-09-14T15:48:00.004-05:002012-09-14T15:48:58.736-05:00Gift Cards neededOur Trivia is a little more than 2 weeks away!! <br />
We have sold 17 tables and have 9 more avaiable!!! <br />
If you are in our area please share this fundraiser with all your friends!<br />
Signs will be going up all around Eureka tomorrow! <br />
<br />
We have some GREAT items for our silent auction! Some of the items we have received are <br />
<br />
Securtiy system with monitoring discount<br />
Coach Hand Bag<br />
Signed mini Rams helemt<br />
2 signed basballs from the Cardinals (Allen Craig & Jon Jay)<br />
2 Fred bird shirts<br />
Cardinals blanket<br />
Cardinals fitted Hat<br />
2 Build A Bears and $10 gift card<br />
3 Different Avon Baskets<br />
Gift cards to Harvest Resturant<br />
Igloo Cooler Set<br />
Cub Cake baskets <br />
Scratch Off Loto<br />
Branson Get Away Package<br />
and much much more! <br />
I do not want to list it all out here I would like some to be a surprsise!!!<br />
<br />
One thing we are looking for is Gift Cards (any amount) to stores, restuarnts or gas stations. Any where really! <br />
Just send them to <br />
Tammy Valencia<br />
11695 Castle Ranch Rd <br />
Desoto, MO 63020<br />
<br />
Our Goal is to raise $3,000 and we are well on our way!!! <br />
<br />
Help us fill those last 9 tables!!!<br />
<br />Tammyhttp://www.blogger.com/profile/14779555261527367891noreply@blogger.com0tag:blogger.com,1999:blog-5211323220282490702.post-38586742917384911242012-08-29T08:55:00.000-05:002012-08-29T09:08:23.848-05:00Lemierre's Video At the top of our webpage I posted a Lemierre's Video I found this morning.<br />
I really like this video because I can understand what the Dr. is saying. Sometimes it is hard to understand what Dr.s are saying because of the technical words they use. ;0) <br />
Check it out and pass it along to others!Tammyhttp://www.blogger.com/profile/14779555261527367891noreply@blogger.com0tag:blogger.com,1999:blog-5211323220282490702.post-88984424805742352102012-08-14T09:33:00.000-05:002012-08-14T09:33:07.973-05:00Trivia Night ~ Tables will go fast!I will be putting up flyers and posters all over Eureka next week as well as putting ADs in the Newspapers all over St. Louis. <br />
I am hoping once we do this the tables will be selling fast! So this is to all Friends and Family in the St. Louis area. Please get your tables reservations in to me ASAP. I would hate for you to wait until the last minute and then I have to tell you we are full! ;0( <br />
xoxoxoxoxo <br />
<br />
Our goal with this fundraiser is to raise $3,000!!!! We need $4,000 but our goal is $3,000.<br />
<br />
Help us meet our goal!!! <br />
We will have mulligans for sale ~ those that do not know what they are, these are basically a guarantee right answer! ;0)<br />
We will also play Heads/Tails throughout the night and have 2 ~ 50/50 raffles <br />
There will also be Lemierre's items for sale such as T Shirts, wrist bands, stickers, ribbons and other items. <br />
We will have a table set up for our silent auction baskets! Some of the things we have received so far are:<br />
A Baking Basket<br />
Hot Air Balloon Ride<br />
A Home Security System<br />
31 Tote bag<br />
2 tickets to Silver Dollar city along with 2 tickets to the Steam boat Branson Belle<br />
Avon items <br />
Premier Design Jewelry pieces<br />
Build A Bear items<br />
Gift cards to places all around St. Louis including <br />
Hot topic<br />
Bedbath n beyond<br />
Barnes n Noble <br />
Harvest Restaurant <br />
<br />
We have much much more coming!!!! <br />
<br />
If you would like to put together a basket OR just donate a gift card to anywhere; gas stations, restaurant, local place of business, please <br />
just let me know by Sept 15th. <br />
THANK YOU!!!!<br />
<br />
Tammyhttp://www.blogger.com/profile/14779555261527367891noreply@blogger.com0tag:blogger.com,1999:blog-5211323220282490702.post-48980828438653886492012-07-19T20:46:00.002-05:002012-07-19T20:46:48.127-05:00<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh38zorv78gxnXJHPpOYy1KbGU5yf-RBjqbSUPzH8eU17EfBFZeQEskyIKrYvBZQuOnFzLOFFPIYnwYbsWQ4WQOjzSa6LOk5DNzYamx7Awmuy0pCPiqYLhfBaiTNbE_Uf-KqUsdKxxwNxw/s1600/Trivia.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh38zorv78gxnXJHPpOYy1KbGU5yf-RBjqbSUPzH8eU17EfBFZeQEskyIKrYvBZQuOnFzLOFFPIYnwYbsWQ4WQOjzSa6LOk5DNzYamx7Awmuy0pCPiqYLhfBaiTNbE_Uf-KqUsdKxxwNxw/s320/Trivia.jpg" width="243" /></a></div>Tammyhttp://www.blogger.com/profile/14779555261527367891noreply@blogger.com0tag:blogger.com,1999:blog-5211323220282490702.post-82812543746632076272012-05-30T18:27:00.000-05:002012-05-30T18:27:05.672-05:00Fundraiser TIME!This September we are going to hold a Trivia Night to help us raise money for Dr Robert Centor's research! <br />
<br />
I started the Donation letter today! I will be mailing this letter to many companies here in St. Louis. If you know of any company (does not have to be in the St. Louis area) that you think would donate to us for this event please email me or leave a comment here. This can be any thing examples are, drinks (alcohol or non alcohol), snacks, items for Silent Auction or Prizes, money or anything else that can be thought of. <br />
<br />
I will post more details about this Trivia Night in a few weeks. Our plan is to make this a FUN trivia night and ask questions that any age group should be able to answer. ;0) I've been to plenty of Trivia Nights and thought to myself "wow this really makes me feel dumb!" I think it would be really fun to have a DJ set up after the Trivia Night and we can dance and hang out afterwards. <br />
<br />
The way I have seen them work in the past is you sell tables. For example you have a table that can seat 8-10 people and they can buy it for $120 - $160. Those details will be figured out very shortly.<br />
<br />
Justin's Birthday is Sept 28th and I would love to have this event on the 29th hopefully it will work out for that date. <br />
xoxoxoxo<br />Tammyhttp://www.blogger.com/profile/14779555261527367891noreply@blogger.com0tag:blogger.com,1999:blog-5211323220282490702.post-39271409097867183522012-05-09T10:06:00.000-05:002012-05-09T10:06:58.237-05:00SlidesI just realized the company that we had our picture slides through on this site and our Lemierresyndrome.com site is no longer in business. ;0( So I will be working on getting more pictures up of our items we have for sale as well as the pictures of Justin.Tammyhttp://www.blogger.com/profile/14779555261527367891noreply@blogger.com0tag:blogger.com,1999:blog-5211323220282490702.post-34633360023745273192012-03-29T10:21:00.000-05:002012-03-29T10:21:15.015-05:00Donation Sent!I put a check in the mail for Dr. Robert Centor and his medical team for their study!
I'm really excited that we get to help them with their study!
Thank you to everyone that has purchased awareness items and helped us in our fundraising efforts.
We are still trying to come up with ideas for more fundraisers. If you have an idea or heard of something another Non - Profit has done and you think it would be a big success email me! ;0)
Sunflwz2@Yahoo.com
I received a phone call from my cousin the other day and she heard of a Zombie 5K Run. She heard they were looking for Charities to help so I emailed them and we'll see what happens. It looks really cool!
www.runforyourlives.com I would love to be a apart of this event. Pretty scary stuff!
TammyTammyhttp://www.blogger.com/profile/14779555261527367891noreply@blogger.com0tag:blogger.com,1999:blog-5211323220282490702.post-28148656990484677252012-02-24T15:07:00.002-06:002012-02-24T15:08:56.290-06:00FundraisersMany of you have contacted me in the last 4 years and have expressed to me your thoughts of this horrible disease. Some of you are survivors, some of you family members of lost loved ones and some just learned about the disease through our efforts. First off I want to thank you all for contacting me and expressing your thoughts and encouragement to us. It's because of all your emails and comments that we have continued our efforts and our fight against this disease.
For the last 4 years our fight was to make people more aware of this disease, in the hopes it would reach Dr's so we could diagnose this faster. The past 4 years I have been in contact with Dr Robert Centor. Many of you already know him and his website. www.medrants.com He has spent over 30 years studying pharyngitis and all those nasty bacterias. I approached him in Jan asking if he knew of anyone doing a study or needing funds to help start a study and coincidentally that is when he told me about what he has going on. He has a new study going on right now for Fusobacterium necrophorum pharyngitis. This is what he had to say about his new study "We hope to describe the signs and symptoms of fusobacterium pharyngitis. Currently too many physicians withhold antibiotics from adolescents and young adults with significant pharyngitis. We want to change the approach to adolescent and young adult pharyngitis and hopefully prevent the development of Lemierre syndrome." He needs funds to help run this study and I told him we would be willing to help.
Many of you have contacted me asking how to run or set up a fundraiser in your area. Since we are the only Charity or Non Profit for Lemierre's it is very hard for us to set up a walk that happens in cities all over the US. I just came back from a fundraiser a company held in PA last weekend. It was a huge success and it will really help towards our goal in this study. We have done a few fundraisers here in St. Louis that have been great we held a Walk, a paintball tournament, a dance, the event at Hidden Valley a few years ago was fun and brought in the largest donation we have received yet! If any of you have ideas of how we can get others involved in cities all across the the US as well as in the UK we would love to hear them. Please email me as soon as you have an idea. If any of you want to set up a fundraiser in your area but do not know how to start or what to do I would be willing to share my thoughts and opinions with you. Any ideas or thoughts you all have would be greatly appreciated!
Thank you for your emails, thoughts, prayers and helping us fight this battle!Tammyhttp://www.blogger.com/profile/14779555261527367891noreply@blogger.com0tag:blogger.com,1999:blog-5211323220282490702.post-36863811330910718072012-02-20T23:06:00.000-06:002012-02-22T09:12:56.111-06:00Our trip to PAChrissy and I made the trip to PA this past weekend to accept a donation from a company whose employee developed Lemierre's this past Nov. Every year this company holds a fundraiser for a charity that hits close to home to one of their employee's. This year they chose us since their employee/friend Marc developed lemierre's not too long ago. Everyone was very nice and I love that they do this every year! This was their 22nd year holding this fundraiser. Every year they choose 3 men and 3 women and they hold a BBQ lunch and bake sale and instead of the employees paying for the food they put the money in the canister of the person they want to win. I'll give you one guess on who was crowned King, Marc! ;0) I will post pictures as soon as I receive them. This donation they gave to us is really going to help with our first research study!
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Yep that's right Dr. Robert Centor is starting a research study on why young adolescents developed Lemierre's, why the Fusobacterium necrophorum grows with some of the patients with sore throats and not the others...?
We are going to help fund this research which means we will be holding fundraisers in the very near future.
I am also putting together a database in my Yahoo account with every person who has contacted me in the last 4 years in regards to lemierre's. I will be sending out an email to every person in that database asking for their help in fundraising. Hopefully I will be done with this by the end of this week. We need ideas. As well as help holding some of these fundraisers in other parts of the U.S. Maybe your company has a charity they donate to each year, maybe this year it could be to us to help with this study! Or maybe you want to hold a BBQ or a walk or some other event to help us raise funds for this study. We would really appreciative of any ideas or any thoughts anyone has.
Check out Dr. Centor's blog at www.medrants.com
Thank you!!
Lots of love,
TammyTammyhttp://www.blogger.com/profile/14779555261527367891noreply@blogger.com2