tag:blogger.com,1999:blog-5211323220282490702.comments2022-04-08T08:09:02.133-05:00Justin's battle with Lemierre's SyndromeTammyhttp://www.blogger.com/profile/14779555261527367891noreply@blogger.comBlogger176125tag:blogger.com,1999:blog-5211323220282490702.post-49742102242601488942016-01-17T19:42:10.811-06:002016-01-17T19:42:10.811-06:00Hello, I see this is an old thread but my daughter...Hello, I see this is an old thread but my daughter who is 18, was diagnosed in May 2015 and we almost lost her. Spent about two weeks seeing Dr's and ER visits, just to be told it is a virus. She started with sore throat and swollen left neck. It progressed into her lungs and she was admitted to the ICU because of her blood pressure and heart rate. She had bilateral pneumonia with emboli. While in the hospital she had a pulmonary hemorrhage, coded and was placed on a ventilator for 3 days. She missed her last two weeks of her Senior year and graduation due to this. She is tough and made an amazing comeback and started college on time. We are very thankful to still have her here with us. Knowing that this could have been taken care of earlier with antibiotics(which she was on 3) is very alarming. She was a perfectly healthy child except for ear infections and an occasional strep throat in the past. I would never wish anyone to go through what I witnessed my daughter go through. Nothing helped the pain, the muscle atrophy and weight loss from being bed ridden and the mental fatigue it places on young teens. My pediatricians office is using her case to re-evaluate how they treat. Cincinnati, OhioJadhttps://www.blogger.com/profile/08307101298129022086noreply@blogger.comtag:blogger.com,1999:blog-5211323220282490702.post-36330709686277668922014-03-25T12:23:07.538-05:002014-03-25T12:23:07.538-05:00My name is Wendy and I'm a 34 year old woman l...My name is Wendy and I'm a 34 year old woman living in Amersfoort, the Netherlands. October 2nd 2013 I was diagnosed with Lemierre's syndrome and after three weeks I was released from the hospital. Although my body is clean, I sometimes still feel like I'm recovering. But compared to a few months ago I shouldn't complain and I'm very pleased with the recovery up untill now.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5211323220282490702.post-25907719365139064732014-03-24T18:30:30.802-05:002014-03-24T18:30:30.802-05:00Hello, I was a unit secretary in the PICU at Cardi...Hello, I was a unit secretary in the PICU at Cardinal Glennon when Justin was admitted and I was deeply affected by his case - I have never forgotten it. My mom is a Pediatric Nurse Practitioner at Cardinal Glennon and it has stayed with her as well. We wanted you to know that this week, Justin saved my 15 year old cousin's life. She had a terrible sore throat and neck. Her doctors put her on oral antibiotics, but she wasn't getting better. She was admitted to the hospital in Austin, TX. Doctors were not sure what she had, but my mom knew. She called my aunt and uncle to have them insist Lily be tested for Lemierre's. Doctors were skeptical and wanted to wait, but tests came back positive. She has since had surgery and is starting to rebound. I want you and your family to know how thankful my family is that our experience with Justin expedited Lily's diagnosis and treatment. Thank you.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5211323220282490702.post-52071198601941572452014-03-24T18:02:56.729-05:002014-03-24T18:02:56.729-05:00My cousin is 15 and was diagnosed last Thursday in...My cousin is 15 and was diagnosed last Thursday in Austin, Texas.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5211323220282490702.post-12813653449777902582014-03-18T08:51:52.207-05:002014-03-18T08:51:52.207-05:00I was diagnosed with Lemierre's one year ago t...I was diagnosed with Lemierre's one year ago today. March 18, 2013. I am in Longview, TexasAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-5211323220282490702.post-66740370836430751062014-03-15T23:38:07.545-05:002014-03-15T23:38:07.545-05:00THANK YOU FOR POSTING TAMMY!!
I hope this is a suc...THANK YOU FOR POSTING TAMMY!!<br />I hope this is a successful event so it can spread awareness to a lot of people and make some money for the JROD foundation!<br />Thank you,<br />Sherrill IniguezAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-5211323220282490702.post-91326553077424006492014-03-15T18:30:15.432-05:002014-03-15T18:30:15.432-05:00I'm 16 years old (female) and I was diagnosed ...I'm 16 years old (female) and I was diagnosed with lemierre's in january 2014, it was horrible and I spent my 16th birthday in a hospital bed on allsorts of drips and stuff! Hope you can get in touch with me? XAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-5211323220282490702.post-29437756765817767512014-01-03T14:01:23.754-06:002014-01-03T14:01:23.754-06:00Hanover NH oct 2012Hanover NH oct 2012Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5211323220282490702.post-41954665519844176282013-11-25T21:51:39.532-06:002013-11-25T21:51:39.532-06:00My nephew was just diagnosed this and we are looki...My nephew was just diagnosed this and we are looking for some answers of what more can be done. He is a young healthy 22 yr old and like most was diagnosed with strep but turned into pneumonia - one week into this -he is currently on a respirator and sedated - what should we know or be asking the doctors???Anonymoushttps://www.blogger.com/profile/11128637353370355376noreply@blogger.comtag:blogger.com,1999:blog-5211323220282490702.post-52240514147164530592013-11-24T20:45:25.836-06:002013-11-24T20:45:25.836-06:00Please go see Dr Farrin Manian - he helped me abou...Please go see Dr Farrin Manian - he helped me about 7 years ago.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5211323220282490702.post-7368182132593868532013-10-01T17:43:50.717-05:002013-10-01T17:43:50.717-05:00Hi
My daughter, now 19 had Lemierres syndrome in 2...Hi<br />My daughter, now 19 had Lemierres syndrome in 2008. They diagnosed it just in time. Tony Shillhttps://www.blogger.com/profile/01103666532877539758noreply@blogger.comtag:blogger.com,1999:blog-5211323220282490702.post-83533403923895353322013-09-06T23:56:24.794-05:002013-09-06T23:56:24.794-05:00My husband Ray had lemierres syndrome in April of ...My husband Ray had lemierres syndrome in April of 2012. We are from Soldotna, Alaska.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5211323220282490702.post-37083128502871008812013-06-03T17:01:47.363-05:002013-06-03T17:01:47.363-05:00Hi, my name is John Kubilis from Framingham, MA (a...Hi, my name is John Kubilis from Framingham, MA (age 27). I just got out of the hospital after the most terrifying two weeks of my life. This thing hit me out of nowhere. I am pretty much obsessed with health and fitness and am an amateur athlete. I was shocked to find out I almost died from this terrible disease. I lost 20 lbs of muscle in 2 weeks, 175 down to 155..But I was one of the fortunate ones and I am on the road to recovery. It'll be a tough few months, but I know there are those out there who weren't so lucky and my deepest sympathies go out to all the friends and families of those loved ones who weren't diagnosed and treated in time. <br /><br />If there is anyone out there who can advise me on how to go about exercising while on the antibiotics and blood thinners I would greatly appreciate it.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5211323220282490702.post-28435321724047415662013-04-08T00:31:14.012-05:002013-04-08T00:31:14.012-05:00Murrieta, California 2010Murrieta, California 2010Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5211323220282490702.post-81003597305143741822013-04-05T02:36:35.933-05:002013-04-05T02:36:35.933-05:00Albany NY Albany NY Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5211323220282490702.post-14912870289883643282013-03-26T21:20:59.548-05:002013-03-26T21:20:59.548-05:002012 Pittsburgh Pennsylvania2012 Pittsburgh PennsylvaniaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-5211323220282490702.post-35919423797063920782013-03-23T07:24:11.381-05:002013-03-23T07:24:11.381-05:00Houston TX 2013Houston TX 2013Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5211323220282490702.post-17156311330996314132013-02-11T20:34:51.831-06:002013-02-11T20:34:51.831-06:00Allegan, MIAllegan, MIAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-5211323220282490702.post-20295638550487702442013-01-24T17:56:39.394-06:002013-01-24T17:56:39.394-06:00Hi Tammy, my name is Cheryl Falzon, i had Lemierre...Hi Tammy, my name is Cheryl Falzon, i had Lemierres Syndrome in March 2002, i am from London , England. All the very best for your awarness compain for this forgotton disease. Anonymoushttps://www.blogger.com/profile/02366094481343409027noreply@blogger.comtag:blogger.com,1999:blog-5211323220282490702.post-70164601165064343962013-01-24T17:53:25.801-06:002013-01-24T17:53:25.801-06:00Hi Tammy , My name is Cheryl Falzon, i had Lemier...Hi Tammy , My name is Cheryl Falzon, i had Lemierres syndrome in March 2002 , i am from London in the UK.Anonymoushttps://www.blogger.com/profile/02366094481343409027noreply@blogger.comtag:blogger.com,1999:blog-5211323220282490702.post-77258987614199856102013-01-15T10:52:01.883-06:002013-01-15T10:52:01.883-06:00Salt Lake City Utah January 11 2013Salt Lake City Utah January 11 2013Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5211323220282490702.post-49863312711738097242013-01-14T22:52:33.333-06:002013-01-14T22:52:33.333-06:00reading, Pennsylvania 2012reading, Pennsylvania 2012Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5211323220282490702.post-70824595368834691362013-01-14T10:32:07.837-06:002013-01-14T10:32:07.837-06:002012-2013 Flagstaff and tucson Arizona 2012-2013 Flagstaff and tucson Arizona Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5211323220282490702.post-26791301727442942442012-10-04T18:09:35.404-05:002012-10-04T18:09:35.404-05:00My 17 year old nephew (a 6ft strapping healthy you...My 17 year old nephew (a 6ft strapping healthy young man) has just been diagnosed today with Lemierres Syndrome in Hamilton, Ontario. He is on a respirator, has pneumonia, pleurisy, partially collapsed lungs, a huge mastoid lymph node on his right side, his lungs are full of pus nodules, they can't keep his fever down, they just inserted a pic line to start some new antibiotics. He has been in the ICU since Friday Sept 28th/12. Just looking for as much information as I can on this disease. I am grateful that they have a diagnosis but now what?<br />Patty Davidson - pattydavidson@sympatico.caAnonymoushttps://www.blogger.com/profile/10400943706056002403noreply@blogger.comtag:blogger.com,1999:blog-5211323220282490702.post-51825719066504652272012-04-09T16:52:20.200-05:002012-04-09T16:52:20.200-05:00Hej,
I'm Jill from Belgium. I was diagnosed wi...Hej,<br />I'm Jill from Belgium. I was diagnosed with Lemierre's syndrome 3 years ago. I was very ill, had a fever, didn't eat anymore, couldn't stand on my feet and hallucinated. When they brought me to the hospital they found the cause very fast. Luckely, 'cause it was already in a bad stage. They put me in a coma because i would be in too much pain. They cut my left and right leg open, my right hip and my right arm. My lungs were very bad infected too but as a miracle it healed. There was only 0,1% chance to survive. I made it . But it was a hard recouvery. I only could move my left arm. I was 3 months in a coma so all my muscles that remain were stif. My arm and my left leg fully recouvered but my right leg was a mess. A lot of muscle and bone had been so infected that they or dissapeared or were useless. Nowadays I have a new knee. But i still can't bend more than 95°. My achilles muscle is dissapeared so I can't bend my foot to the right and can't stand on my tiptoes. But I survived and im proud of it! I'm very sorry to hear about Justin. It is indeed a disease that have to be in 'in the spotlights'. I'm kind of searching for people who suffered to it toAnonymousnoreply@blogger.com