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Friday, May 15, 2009

lemierresyndrome.com is # 3 !!!!

I just googled Lemierre Syndrome and out of 20,600 search results our website comes up 3rd!! That's amazing!!!
From what I read on his website Michael has been released from the hospital you can read about his recent surgery @ http://www.prayformichael.com/
Also I have had 2 cases emailed to me this week. One is a 4 yr old boy! I told both of their family's our thoughts and prayers are with them.
I received the short sleeve T Shirts yesterday so they are in and ready to be purchased! ;0)

Thank you everyone!
MUCH LOVE,
Tammy

5 comments:

Anonymous said...

Hey,

This is Adam Elliott and I have talked with you once since I have had L.S. I just wanted to know if there is anything that I could do to help people know about this horrible diesese that is tear threw the midwest....I can be reached at Train_2929@yahoo.com...

Thanks in advance....

Adam

Bernadette said...

It is not just the midwest. I am fron New Jersey and my daughter is fighting it. This needs to be known to all.

Nina said...

My 19 year old son was hospitalized recently for 9 days, released, and continues his treatment at home. The key to his recovery was an infectious disease specialist on staff. Along with daily IV and oral antibiotics, he is being treated with heprin, an anticoagulant. He was on 5 antibiotics while they searched for answers but they were not effective Once diagnosed, the docs were able to target the bacteria with the right meds, and within 24 to 48 hours he turned the corner. He lost 20 lbs and his lung capacity is still diminished but he is on the mend. They said it will be a long recovery. His infectious disease doctor was Kaufman at St. Dominican Hospital in Santa Cruz, but any ID doc should be able to help.

Jamie said...

Hi my name is Jamie and I'm 16. I had lemierre's syndrome back in March of 2009. I was in the hospital for 8 days and was on a PICC line, had to inject myself with lovanox shots everyday and took several oral antibiotics once I was out of the hospital. I am now fully recovered except some lung damage but that is expected to get better over time. I am very grateful for all of the doctors that took care of me while I was sick and if it wasn't for them I wouldn't be here. I am already trying to spread the word of L.S. and I've already ordered some wrist bands and gave them to my family and friends and I'm going to order more very soon. I want to help as much as I can to spread the word about L.S. If there is anything I can do please reach me at...
Jamie_reaves123@yahoo.com

Jamie

Anonymous said...

We just celebrated our son's 5th birthday and we are so thankful for all your support and direction you have given us. We are still on the road to recovery and he is now being seen my a team of doctor's at Nationwide Children's Hospital in Columbus...they are great and believe it or not they actually know what Lemierre's is!!!!!!!


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Justin's news article in the West Magazine

This was taken from http://www.westnewsmagazine.com/news02.html

Rockwood student dies rapidly from little-known disease
By Diane Plattner

In April, Eureka High School student Justin Rodgers began to complain of a severe sore throat and was dead approximately one month later from an unfamiliar disease. Now, his mother hopes to spread awareness about the deadly disease.
Justin died in the early morning hours of May 12, the day after Mother’s Day, after losing a battle with Lemierre’s Syndrome, a serious bacteria that is not well-known and even doctors are prone to misdiagnose the disease. Unfortunately, Rodgers’ doctor was among that group after initially diagnosing him with strep throat on April 11, said Sheryl Rodgers, Justin’s mother.
“Justin had said, ‘Mom, this is the worst sore throat I’ve ever had in my life,’” Rodgers said.
She said that Justin’s doctor took no throat culture and gave her son medicine for strep throat. She said her son’s condition worsened over the next few days during which he had increased high fever, chest pain and a lump in his neck. On April 14, Rodgers took her son to St. Anthony’s Hospital, which transported him overnight to Cardinal Glennon Children’s Hospital where he underwent extensive testing, including X-rays and blood work, Rodgers said.
Rodgers said that hospital officials diagnosed him with Lemierre’s Syndrome, a bacteria that can surface after mouth trauma. Last July, Justin was in a car accident that resulted in mouth injuries that required him to get major dental work, including a recent new tooth. In addition, Justin had suffered a broken nose just before the onset of his sore throat, his mother said.
“I wonder if all this woke up the bacteria, which was already living in the body,” Rodgers said.
The last time Rodgers saw him fully awake was a few days later, when hospital officials decided to place her son on a respirator and sedate him with drugs.
“He was out of it but still with us then,” Rodgers said. “He would frown when the doctors worked on him. So he had some responses.”
However, Justin’s lungs kept collapsing, prompting hospital doctors by April 25 to place him on an ECMO machine to help rest his lungs and heart. Doctors at that point also put him into an induced coma, Rodgers said.
“At that point there was no response from Justin,” Rodgers said. “Still, I talked to him and rubbed his sore spots to let him know we were there.”
By Mother’s Day, Justin was leaking too much blood, prompting doctors to decide to remove him from the ECMO, a move they said was risky if his lungs were not healed enough.
“Once they took him off the ECMO, Justin’s face was getting gray,” Rodgers said. “He was holding his own for a few hours, but then he starting going downhill.”
Justin died early the next morning following Mother’s Day with his immediate family, including three older siblings, by his side, Rodgers said.
“He was our baby,” Rodgers said. “I think the hospital tried to keep him going so he did not die on Mother’s Day.”
The tragedy is not the first for the Rodgers family. They also lost a 4-year-old child in a horseback riding accident and had a stillborn child many years ago, Rodgers said.
“I thought God could not possibly do this to us again,” Rodgers said. “I asked why again, why us. But there is no answer. Here we are walking on egg shells again.”
Rodgers said she was at least thankful that Justin’s funeral was so big that people were standing outside, a huge tribute to his life. She also hopes to honor his life with a campaign to help spread awareness about Lemierre’s Syndrome, which she said often hits people between the ages of 14 and 25. It is not spread by kissing but instead lives in the body, she said. Her goal is to make people, including doctors, more aware of its symptoms so they are not mistaken for strep throat.
“I do not want Justin to have died in vain,” Rodgers said. “This is one bad bacteria. It is very serious. People should not treat it lightly.”
To learn more about Lemierre’s Syndrome, visit the Rodgers’ family Web site at lemierresyndromejrodgers.blogspot.com.