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Friday, August 13, 2010

Exciting stuff going on!!

There are some exciting things going on in the life of Lemierre's Awareness!!!

About a month ago I received an email from the casting producer for "Mystery Diagnosis." They are very interested in producing a show on Lemierre's!!! And then Thursday I received a email from Dr. Centor saying the Study has been approved!!!



The University of Alabama at Birmingham is conducting a study of Lemierre’s Syndrome focusing on the duration of symptoms prior to hospitalization, length of stay, and cost of care. If you are 15 or older and have a history of Lemierre’s or are the parent of someone with a history of Lemierre’s please click here to participate.
Study entry process - http://www.medrants.com/lemierre-study/study-entry-process
For a preview of the consent form: http://www.medrants.com/lemierre-study/consent-form
For a brief description of the study - http://www.medrants.com/lemierre-study

2 comments:

Theresa said...

I just discovered your web site and let me first say how sorry that I am for your loss. Your efforts to bring awareness to this illness are greatly apprecaited. Plus, I plan to particiatpe in the UA Birmingham study. My 17 year old son developed Lemierre Syndrome on August 31, 2008. ONLY by the Grace of God he survived. It was a true miracle!! After 19 days in ICU and at least 18 doctors from all over the USA consulting my son was able to walk out of the hospital. Not one doctor was able to diagnosis this illness. The final diagnosis came from CDC in Atlanta three months after my son left the hospital. This is no longer a rare and mysterios illness. In a modern health care world doctors should be able to diagnosis and treat this bacteria before it consumes a young person. Justin deserved better. God bless his sole! Justin's death should concern every mother and father and parents of teenagers should know to how to help their doctor diagnosis and treat this bacteria before it takes the life of more beautiful young people.
May God bless your family and heal your broken hearts. Theresa Gumpert twojoys@embarqmail.com

Bird said...

I'm so sorry for your loss. I guess I am one of the lucky ones, I had Lemierre's in Sept/Oct 2006 but it was found early enough. I felt like I was losing my mind because nobody could tell me what was wrong with me. It took 2-3 weeks before I was finally admitted to a hospital. A very hard time in my life, I had a 2nd grader and a pre-schooler at the time. It was really hard on them too. If there is ever anything I can do please feel free to contact me. Thank you for sharing your Justin with all of us.

Bird Janhonen


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Justin's news article in the West Magazine

This was taken from http://www.westnewsmagazine.com/news02.html

Rockwood student dies rapidly from little-known disease
By Diane Plattner

In April, Eureka High School student Justin Rodgers began to complain of a severe sore throat and was dead approximately one month later from an unfamiliar disease. Now, his mother hopes to spread awareness about the deadly disease.
Justin died in the early morning hours of May 12, the day after Mother’s Day, after losing a battle with Lemierre’s Syndrome, a serious bacteria that is not well-known and even doctors are prone to misdiagnose the disease. Unfortunately, Rodgers’ doctor was among that group after initially diagnosing him with strep throat on April 11, said Sheryl Rodgers, Justin’s mother.
“Justin had said, ‘Mom, this is the worst sore throat I’ve ever had in my life,’” Rodgers said.
She said that Justin’s doctor took no throat culture and gave her son medicine for strep throat. She said her son’s condition worsened over the next few days during which he had increased high fever, chest pain and a lump in his neck. On April 14, Rodgers took her son to St. Anthony’s Hospital, which transported him overnight to Cardinal Glennon Children’s Hospital where he underwent extensive testing, including X-rays and blood work, Rodgers said.
Rodgers said that hospital officials diagnosed him with Lemierre’s Syndrome, a bacteria that can surface after mouth trauma. Last July, Justin was in a car accident that resulted in mouth injuries that required him to get major dental work, including a recent new tooth. In addition, Justin had suffered a broken nose just before the onset of his sore throat, his mother said.
“I wonder if all this woke up the bacteria, which was already living in the body,” Rodgers said.
The last time Rodgers saw him fully awake was a few days later, when hospital officials decided to place her son on a respirator and sedate him with drugs.
“He was out of it but still with us then,” Rodgers said. “He would frown when the doctors worked on him. So he had some responses.”
However, Justin’s lungs kept collapsing, prompting hospital doctors by April 25 to place him on an ECMO machine to help rest his lungs and heart. Doctors at that point also put him into an induced coma, Rodgers said.
“At that point there was no response from Justin,” Rodgers said. “Still, I talked to him and rubbed his sore spots to let him know we were there.”
By Mother’s Day, Justin was leaking too much blood, prompting doctors to decide to remove him from the ECMO, a move they said was risky if his lungs were not healed enough.
“Once they took him off the ECMO, Justin’s face was getting gray,” Rodgers said. “He was holding his own for a few hours, but then he starting going downhill.”
Justin died early the next morning following Mother’s Day with his immediate family, including three older siblings, by his side, Rodgers said.
“He was our baby,” Rodgers said. “I think the hospital tried to keep him going so he did not die on Mother’s Day.”
The tragedy is not the first for the Rodgers family. They also lost a 4-year-old child in a horseback riding accident and had a stillborn child many years ago, Rodgers said.
“I thought God could not possibly do this to us again,” Rodgers said. “I asked why again, why us. But there is no answer. Here we are walking on egg shells again.”
Rodgers said she was at least thankful that Justin’s funeral was so big that people were standing outside, a huge tribute to his life. She also hopes to honor his life with a campaign to help spread awareness about Lemierre’s Syndrome, which she said often hits people between the ages of 14 and 25. It is not spread by kissing but instead lives in the body, she said. Her goal is to make people, including doctors, more aware of its symptoms so they are not mistaken for strep throat.
“I do not want Justin to have died in vain,” Rodgers said. “This is one bad bacteria. It is very serious. People should not treat it lightly.”
To learn more about Lemierre’s Syndrome, visit the Rodgers’ family Web site at lemierresyndromejrodgers.blogspot.com.