Free ticket to those affected by Lemierres!

We have a little less than 1 month before we have to pay the Cardinals for the tickets they gave us. 
Last night we had a thought......
We want everyone in or around St. Louis that has had to deal with this HORRIBLE disease to join us on Lemierre's Awareness night @ Busch Stadium!!!  Sat. Sept 13th @ 6:15pm
If you are a Lemierre's Survivor we want you to be there!  If you have lost someone to Lemierre's we want you to be there! 
Please get in contact with me ASAP (before we sell out) to get your ticket!!!  We will give 1 ticket to the survivor of Lemierre's!  We will also give 1 ticket (per family) to those that have lost someone to Lemeirre's.   Email me @ JERFOUNDATION@YAHOO.COM
If you are seeing this and are around the St. Louis area and know someone that was affected by this disease please tell them to contact me!  We want them to be there with us! 

 

I never thought I would see that room again.

Today was a very productive day!  We went to 8 Hospitals and Urgent Cares and made contact with hundreds of Dr's and Nurses!  The last stop was one of the hardest and it did not go as well as I thought it would.  We went to the hospital that Justin was in.  I thought it was going to be just as the others.  Walk in, explain who we are and what we are doing and leave the items.  But I felt a tug at my heart.  I asked to speak with a lady that was there during Justin's stay and who's personal life we have helped during our fight.   Mrs. Mary came out to say hi and welcomed us by bringing over one of Justin's Dr's.  It brought back a flood of feelings seeing him and being in that hospital again.  You would think it would be sad, depressing feelings but for me it was proud, acceptance, love and a feeling that our family choose to do the right thing after Justin passed.  We could have just went on with our broken lives but we decided to stand up and not let his memory go!  We decided to stand up and fight and being there today showed me that we are doing the right thing!  His Dr showed us around the new PICU unit and how so many things are changing. (It is not even open yet.)  Everyone we ran into on that floor he would say "Do you remember Justin Rodgers?" It would take the person a minute but everyone he asked said yes they did!  Then he would continue to tell them who we were, why we were there today and to let all the new staff members know that we left items in the break room to teach them about Lemierre's.  His words were "Let them know about Justin's story. Make sure all the new staff members know about Lemierre's."  As he was showing us the new PICU unit we went through the same doors that we went through May 12th 2008, 6 years ago, to say goodbye.  We walked down the same hall as we did 6 years ago that night, then before I could even realize it we were standing in front of the same room that we stood in 6 years ago and watched my 17 year old, full of life before Lemierre's, brother fight a disease that not many people knew about.  As soon as I did realize it was that room I felt really proud of how far my family has come and how strong my family is for going through everything we went through.  I am very lucky to be a part of this family.  We are strong and extremely close and not everyone can say that about their family.  I receive emails all the time from family members fighting this disease I never thought when we started this Foundation it would come this far.  I thought maybe it would last a few years, we would hit a dead end and that is it.  It has gone so much further than I think any of us thought.  In the past 7 days 1,500 people have viewed our site.  www.lemierresyndrome.com  We've spoken to so many Dr.'s & Nurses and they actually look to us for answers.  This Foundation or "Idea" that was given to us has been a blessing.  I can only speak for myself not my other family members but it has helped me in my grieving process too. 
Thank you for all the love and support everyone of you have given us in the past 6 years!    I hope and Pray this only gets bigger from here and one day everyone will know about Lemierre's just like they know about the other Infectious Diseases out there. 

Baskets for Awareness!!!!

 Look what we did today!!!  These baskets full of goodies are now available for you to take into a local Hospital, Urgent Care or Physician's office in your area!  The only thing we ask is that you help us by paying for the shipping for us to get it to you!  $11.00 for 2!  We will put the basket together and ship it to you.  Then you take it to the hospital or Urgent Care of your choice and tell them you are there to drop these items of for the Dr's or Nurses.  Ask the receptionist to place the basket in the Break Room for the Dr's.  Each Basket will contain a few of the following items:

Water Bottles

Sun Tan Lotion & SPF Lip balm key chain

Hand Sanitizer

Wrist Bands

"Life Savers"

Med. size pads of paper

Smaller size pads of paper

Biz Cards and or Pamphlets

A portfolio explaining Lemierre's and who we are.

To order these baskets go to our Paypal section and select the # you would like us to send you.  

They will come in Qty of 2's.  So if you want 6 baskets you need to enter 3. 

 The total for 6 baskets will be $33.00.

We will mail you the 6 baskets and you take them into the Facilities of your choice. 

Your Dr's office

Your child's Dr's office

The Urgent Care in your area

Hospital in your area

 

 

Another Fundraiser being held for us in Valencia, CA

If you are around Valencia, CA you should stop by and say hi and support a great cause!

I was contacted by Mona a few weeks ago because her son, who had Lemierre's, wanted to hold a fundraiser for us at his baseball field! 

Lemierre’s Syndrome Awareness Fundraiser, during the USSSA Sponsored Spring Break Showcase this Saturday, April 12^th, at the Wm S. Hart Pony Baseball and Softball Complex.  The fundraiser will be conducted from 10am – 6pm.

This is just amazing!  2 families within 1 week holding fundraisers for us!!! 

I really appreciate all everyone does to support us and get the word out about this disease!

Today is the day for the fundraiser in CA!!!!!

I hope you all have lots of fun!!!  I just wanted to give one last push for anyone in this area to stop by a support a GOOD cause!!!  Make sure and say hi to Michael for me!!!!! 
xoxoxox  See the flyer below for more info!!!! 

Attention ALL readers in Petaluma, California!

There is an Fundraiser / Awareness event being held for Lemierres IN California!!! 

Little Zack!

Prayers are needed for 15 year old Zack here in St. Louis. He was diagnosed with lemierre's yesterday!

Cardinals tickets - Sept 29th

We have 50 tickets left for the Cardinals vs Cubs game Sunday Sept 29th at 1:15pm.  This is Lemierres Awareness Day at Busch Stadium!  These tickets are $20 each and you will receive a voucher for a free game for next year as well.  So you are paying $20 for 2 Cardinal's games!  We will be throwing out the first pitch and teaching over 25,000 people about Lemierre's!  Come help us!

Lemierrie's Awareness day at Busch Stadium!!!!

I am so excited! Lemierre's Awareness night at Busch Stadium is a GO!!!! We are selling tickets to the Cards vs Cubs game at 1:15pm on SUNDAY Sept 29 (last home game of the season), how perfect the day after Justin's Birthday!!!! This is NOT a fundraiser we are doing this for awareness! If we sell 500 tickets they will announce our non profit and Lemierre's AND someone will get to throw out the first pitch on our behalf!!!! These tickets are in Section 228 -231 face value of $44 and we are selling them for $20!!!  Email us and I will give you more details. You can barely even PARK at the game for $20 this is an amazing steal!

JERFoundation@yahoo.com

It's been 5 years since my little (bigger than me) brother fell sick with this disease!  I remember being so confused and scared and thinking "no way God would do this to my family again!" You see I had lost 2 sisters at a very young age from different events.  So when I got the call to come say my final goodbye to my 17 year old FULL of life brother I just couldn't believe it!  I remember thinking when I walked in his room and saw everyone crying and upset, thinking what the HELL is going on!  He is going to be fine! You all are wrong! And then he took his last breath.  He waited for me to get there to say goodbye!  I will always be grateful for that.  He passed away on my 1 year wedding anniversary and the day after mother's day!  Spring time always tugs at my heart because while everything else on this earth is coming to life and blooming my brother was lying in a hospital bed dying!  I had to do something, my family wanted to share his story and I can't believe how many other families out there have gone through this very thing and had to deal with this disease!!  But running this foundation has been a HUGE help in dealing with the pain of losing him!  My kids still talk about him and my 3 year old looks and ACTS just like him!  We love you Justin and always will!  I can't wait to see you on the other side!

I received 85 replies of dates and location of where the LS patients are!!  Thank you!!  I am going to start pinning the map today I ill post pictures when I am done!  If you have not yet let me know your location and year you were diagnosed with LS please do ;0) If you already did please do not do it again.  Thank you!!!  If anyone is interested I have these wrist bands for sale $3.00 each.  We accept PayPal only.  xoxoxo  Thank you everyone for helping us in our fight! 

New email address!!!

Justin E Rodgers Foundation has a new email address!!! if you want to contact us for any reason; share your story, ask a question, start a fundraiser ANYTHING email us at
JERFoundation@yahoo.com

I created this email address so that the other officers of our non profit can check it and reply back to you all. That way it is not left 100% up to me! ;0)

Thank you!!!!

Lemierre's Map

I want to start a map and see where everyone is from that has had Lemierre's.    I tried to keep track from all of your emails you have sent me but it just became to hard.  ;0( 

If you yourself have had Lemierre's please let me know the year you had it along city and state you lived in at the time you had it.  If you are commenting for a friend or family member that had it please make sure they did NOT already comment with this info.  I don't want to double up on the info! ;0)  For any friends or family that have had a member of their family pass away due to Lemierre's please take a moment and let me know this info for them. 

Thank you xoxoxox!

I also have this posted to our facebook page so please do not comment in both places. 

If you have not liked us yet on facebook please do so!  AND share the page with all your friends. 

Lemierre's on TV once again!!!

It just makes me so happy every time I heard that a TV station or show has decided to do a segment on TV.  Even if it is only 2 min long.  There have been a handful of them that are actual real stories of people that I know battled this disease.  The only wish I have is  they would mention a little more how deadly this disease is and stop saying it's rare!!  I have much proof to prove how UNRARE (is that a word LOL) it actually is.   OH and maybe that they would mention our non profit!  LOL  that's not to much to ask is it !

On Animal Planet tonight 7pm there is a show called "Monsters inside me".
The guy they are doing the segment on was an actual patient with Lemierre's and from what I read he is a DR. TOO!!! 

Here is the link to the story if you would like to read it. 

http://www.pe.com/local-news/san-bernardino-county/san-bernardino-county-headlines-index/20121205-colton-doctor-former-patient-to-be-on-tv.ece

I was really bumbed and thought I was going to miss it because we have to go to Cruz's school from 6-8 BUT I saw that is will replay at 10pm!!! SO I will get to see it! These times are our times so please check your station to see when it plays for you.


xoxoxo
 

Awaness items on sale!!!

All of our awareness items will be 50% off for the month of Decemeber!!!
Happy Holidays!!!! 

xoxoxo
Tammy