I just have to type up a special "THANK YOU" to everyone that has helped & supported us! We could not continue this fight with out all of you!
I receive at least 5 to 6 emails a WEEK from mom's, dad's, aunt's, uncle's, brother's and sometimes the young people them self that have dealt with this disease! For those Dr.s who say this disease is still rare and only a one in a million change of getting I would like them to contact me. There is no way that is true with all of the emails and stories I receive.
We have received many donations from people all around the world and the people purchasing the ribbons, wrist bands and T shirts are a huge help to!!
We are just at the very beginning of our fight but it is a MUCH needed fight! I can't help but think that there are many more families that have lost their loved ones to this disease and do not even know it! It hides behind so many illnesses and takes so much to diagnose it is insane. You think it's 2009 they know about everything but they don't!
I want to Thank You to these companies that have either donated to us or helped us in any other way! FIRST ONE IS HIDDEN VALLEY in Eureka MO.
When Amity approached us to have the "J-Rod Jam" we were in shock! It turned out to be the best fundraiser I have ever been to! Everyone there especially Amity were amazing!
and at the J-Rod Jam helping us were the following companies:
Monster http://www.monsterenergy.com/
SOKA http://www.sokaskate.com/
Fox Creek Outfitters http://www.foxcreekstl.com/
US Cellular http://www.uscellular.com/
105.7 the point http://www.1057pointthepoint.com/
Z107.7 http://www.z1077.com/
And Kelly Corday with the amazing phone interview on the radio! http://www.y98.com/
Automotive Leasing Corporation also known as Ackerman Auto Plaza http://www.ackermanauto.com/
ALSO a BIG Thank you to Carousel Chocolates www.carousel-chocolates.com
This is my Uncle's company and all his sales from his AMAZING Chocolates goes to our Non Profit.
We have had some great donations for the Golf Tournament and I will list those companies as soon as I have all the information together! Thank you again to everyone!
Because of all the funding we have received so far we are going to start sending letters to EVERY Urgent Care and Doctor office in the United States. I know this disease is WORLD wide but we have to start small. If I take on the whole world I will get too over-whelmed. ;0)
Thank you to Brent!!!! Because of Brent Walquist with Beta Media Group in New York City we now have a Banner with our name and website on it to use at all of our events! Thank you Brent for your donation!
There are so many other people out there helping us Thank you Thank you Thank you!
Dr Robert Centor not only devotes his career to help teach Dr.s about this disease he also supports us as well! Thank you Dr. Centor http://www.medrants.com/ I hope one day we can meet in person!
Love, Tammy
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Justin's news article in the West Magazine
This was taken from http://www.westnewsmagazine.com/news02.html
Rockwood student dies rapidly from little-known disease
By Diane Plattner
In April, Eureka High School student Justin Rodgers began to complain of a severe sore throat and was dead approximately one month later from an unfamiliar disease. Now, his mother hopes to spread awareness about the deadly disease.
Justin died in the early morning hours of May 12, the day after Mother’s Day, after losing a battle with Lemierre’s Syndrome, a serious bacteria that is not well-known and even doctors are prone to misdiagnose the disease. Unfortunately, Rodgers’ doctor was among that group after initially diagnosing him with strep throat on April 11, said Sheryl Rodgers, Justin’s mother.
“Justin had said, ‘Mom, this is the worst sore throat I’ve ever had in my life,’” Rodgers said.
She said that Justin’s doctor took no throat culture and gave her son medicine for strep throat. She said her son’s condition worsened over the next few days during which he had increased high fever, chest pain and a lump in his neck. On April 14, Rodgers took her son to St. Anthony’s Hospital, which transported him overnight to Cardinal Glennon Children’s Hospital where he underwent extensive testing, including X-rays and blood work, Rodgers said.
Rodgers said that hospital officials diagnosed him with Lemierre’s Syndrome, a bacteria that can surface after mouth trauma. Last July, Justin was in a car accident that resulted in mouth injuries that required him to get major dental work, including a recent new tooth. In addition, Justin had suffered a broken nose just before the onset of his sore throat, his mother said.
“I wonder if all this woke up the bacteria, which was already living in the body,” Rodgers said.
The last time Rodgers saw him fully awake was a few days later, when hospital officials decided to place her son on a respirator and sedate him with drugs.
“He was out of it but still with us then,” Rodgers said. “He would frown when the doctors worked on him. So he had some responses.”
However, Justin’s lungs kept collapsing, prompting hospital doctors by April 25 to place him on an ECMO machine to help rest his lungs and heart. Doctors at that point also put him into an induced coma, Rodgers said.
“At that point there was no response from Justin,” Rodgers said. “Still, I talked to him and rubbed his sore spots to let him know we were there.”
By Mother’s Day, Justin was leaking too much blood, prompting doctors to decide to remove him from the ECMO, a move they said was risky if his lungs were not healed enough.
“Once they took him off the ECMO, Justin’s face was getting gray,” Rodgers said. “He was holding his own for a few hours, but then he starting going downhill.”
Justin died early the next morning following Mother’s Day with his immediate family, including three older siblings, by his side, Rodgers said.
“He was our baby,” Rodgers said. “I think the hospital tried to keep him going so he did not die on Mother’s Day.”
The tragedy is not the first for the Rodgers family. They also lost a 4-year-old child in a horseback riding accident and had a stillborn child many years ago, Rodgers said.
“I thought God could not possibly do this to us again,” Rodgers said. “I asked why again, why us. But there is no answer. Here we are walking on egg shells again.”
Rodgers said she was at least thankful that Justin’s funeral was so big that people were standing outside, a huge tribute to his life. She also hopes to honor his life with a campaign to help spread awareness about Lemierre’s Syndrome, which she said often hits people between the ages of 14 and 25. It is not spread by kissing but instead lives in the body, she said. Her goal is to make people, including doctors, more aware of its symptoms so they are not mistaken for strep throat.
“I do not want Justin to have died in vain,” Rodgers said. “This is one bad bacteria. It is very serious. People should not treat it lightly.”
To learn more about Lemierre’s Syndrome, visit the Rodgers’ family Web site at lemierresyndromejrodgers.blogspot.com.
Rockwood student dies rapidly from little-known disease
By Diane Plattner
In April, Eureka High School student Justin Rodgers began to complain of a severe sore throat and was dead approximately one month later from an unfamiliar disease. Now, his mother hopes to spread awareness about the deadly disease.
Justin died in the early morning hours of May 12, the day after Mother’s Day, after losing a battle with Lemierre’s Syndrome, a serious bacteria that is not well-known and even doctors are prone to misdiagnose the disease. Unfortunately, Rodgers’ doctor was among that group after initially diagnosing him with strep throat on April 11, said Sheryl Rodgers, Justin’s mother.
“Justin had said, ‘Mom, this is the worst sore throat I’ve ever had in my life,’” Rodgers said.
She said that Justin’s doctor took no throat culture and gave her son medicine for strep throat. She said her son’s condition worsened over the next few days during which he had increased high fever, chest pain and a lump in his neck. On April 14, Rodgers took her son to St. Anthony’s Hospital, which transported him overnight to Cardinal Glennon Children’s Hospital where he underwent extensive testing, including X-rays and blood work, Rodgers said.
Rodgers said that hospital officials diagnosed him with Lemierre’s Syndrome, a bacteria that can surface after mouth trauma. Last July, Justin was in a car accident that resulted in mouth injuries that required him to get major dental work, including a recent new tooth. In addition, Justin had suffered a broken nose just before the onset of his sore throat, his mother said.
“I wonder if all this woke up the bacteria, which was already living in the body,” Rodgers said.
The last time Rodgers saw him fully awake was a few days later, when hospital officials decided to place her son on a respirator and sedate him with drugs.
“He was out of it but still with us then,” Rodgers said. “He would frown when the doctors worked on him. So he had some responses.”
However, Justin’s lungs kept collapsing, prompting hospital doctors by April 25 to place him on an ECMO machine to help rest his lungs and heart. Doctors at that point also put him into an induced coma, Rodgers said.
“At that point there was no response from Justin,” Rodgers said. “Still, I talked to him and rubbed his sore spots to let him know we were there.”
By Mother’s Day, Justin was leaking too much blood, prompting doctors to decide to remove him from the ECMO, a move they said was risky if his lungs were not healed enough.
“Once they took him off the ECMO, Justin’s face was getting gray,” Rodgers said. “He was holding his own for a few hours, but then he starting going downhill.”
Justin died early the next morning following Mother’s Day with his immediate family, including three older siblings, by his side, Rodgers said.
“He was our baby,” Rodgers said. “I think the hospital tried to keep him going so he did not die on Mother’s Day.”
The tragedy is not the first for the Rodgers family. They also lost a 4-year-old child in a horseback riding accident and had a stillborn child many years ago, Rodgers said.
“I thought God could not possibly do this to us again,” Rodgers said. “I asked why again, why us. But there is no answer. Here we are walking on egg shells again.”
Rodgers said she was at least thankful that Justin’s funeral was so big that people were standing outside, a huge tribute to his life. She also hopes to honor his life with a campaign to help spread awareness about Lemierre’s Syndrome, which she said often hits people between the ages of 14 and 25. It is not spread by kissing but instead lives in the body, she said. Her goal is to make people, including doctors, more aware of its symptoms so they are not mistaken for strep throat.
“I do not want Justin to have died in vain,” Rodgers said. “This is one bad bacteria. It is very serious. People should not treat it lightly.”
To learn more about Lemierre’s Syndrome, visit the Rodgers’ family Web site at lemierresyndromejrodgers.blogspot.com.
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1 comment:
Our son, Andy, had Lemierre's Syndrome in 2001 when he was 24. Like others, he was diagnosed with the flu or strep throat and sent home. This went on for a couple of weeks. Finally, my wife took him to the hospital and refused to leave until someone figured out what was going on. They took a throat culture but botched it in the lab. Instead of waiting for another throat culture one of the doctors had a hunch and put Andy on IV antibiotics. His hunch was right. Andy spent days in ICU and several months to recover completely. I saw the pictures of Justin in the hospital and it breaks my heart. I can picture my son in that bed with all the tubes. I am so sorry you lost Justin. May God comfort you.
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