tag:blogger.com,1999:blog-5211323220282490702.post3362703933668531311..comments2022-04-08T08:09:02.133-05:00Comments on Justin's battle with Lemierre's Syndrome: AwarenessTammyhttp://www.blogger.com/profile/14779555261527367891noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-5211323220282490702.post-83678465893792997672008-09-16T08:37:00.000-05:002008-09-16T08:37:00.000-05:00Lemierre's SurvivorJustin's Family,I had Lemierre'...Lemierre's Survivor<BR/><BR/>Justin's Family,<BR/><BR/>I had Lemierre's Syndrome 7 years ago... I was admitted to a local hospital in Norwalk, CT after being sick for 8 days and seeing numerous doctors in my plan. I was sent home with the exact diagnosis of your son on the 7th day with a "Z-PACK". Upon waking up on Saturday morning, my Mother knew it was time to go to the hospital...Later on that night, my liver enzymes were depleting themselves and my blood pressure dropped drastically to about 60/40. I was immediately rushed to Yale New Haven Hospital due to the lack of supplies (dopamine) @ Norwalk. I was admitted to YNHH August 3rd 2001 and thankfully released on September 4th 2001. I am now 23 yrs old and am ready to help you and yours.<BR/><BR/>I want to express to you my deepest condolences to your family for your loss. I can understand the pain, frustration, anxiety, confusion etc. of everyone involved, including Justin himself. I can further explain my condition during that time and before hand when I was previously a VERY VERY healthy 15yr old....<BR/><BR/>What I can do for your family?? I've really wanted to get involved to spread awareness, but couldn't find a single person (including doctors) other than my family and relatives who knew the severity of this disease.Amy Robertshawhttps://www.blogger.com/profile/10420487928584541859noreply@blogger.comtag:blogger.com,1999:blog-5211323220282490702.post-2414310641583924182008-06-25T23:11:00.000-05:002008-06-25T23:11:00.000-05:00Ive never heard of this Lemierres Syndrome before....Ive never heard of this Lemierres Syndrome before. we are currently going to an ent dr over my daughter constantly keeping strep throat or throat infection 8 times in 12 months. She also has acid reflux. She is 10 yrs old and weighs only 56lbs.. Im so hoping that something can be done. We have fought and argued with ped and dr to get her to ent dr. I will definitely print this off and take it with me when we go. Will keep you in our prayers.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5211323220282490702.post-90367326313308375302008-06-23T03:45:00.000-05:002008-06-23T03:45:00.000-05:00I would like to introduce myself...My name is Cait...I would like to introduce myself...My name is Caitlin. I am 21 years old. As a random and boring night, I thought I would just play around on google. From the deepest depths of my heart I would like to tell you how very sorry I am for your loss. As a surviver of this horrible freak disease, it breaks my heart to hear of someone leaving us due to this sickness...if there is anything that I can do to help your family, please let me know (even if it is as simple as answering a few questions)...you can find me on Myspace as Caitlin Sebaly. I hope to hear from you soon....<BR/><BR/>love, <BR/>caitlinSeebshttps://www.blogger.com/profile/14173079489301058978noreply@blogger.comtag:blogger.com,1999:blog-5211323220282490702.post-16729984599080112582008-06-21T21:02:00.000-05:002008-06-21T21:02:00.000-05:00My son had this same disease at the same time as J...My son had this same disease at the same time as Justin and luckily he was diagnosed in time. He was on a class trip to Germany and got sick with a sore throat that continued to get worse each day. On the day he was supposed to return, the airline wouldn't let him fly home because he was so obviously sick. They allowed him on the plane the next day which was April 1st. He made it to Cincinnati and was rushed to the hospital with severe side pains. He was transported to a community hospital in Florence Kentucky. They did chest x-rays and extensive blood work. After a day in this hospital they did another chest xray and realized that he had a substantial amount of fluid that was going to need drained. The pediatrician recommended that we transport him to Children's Hospital in Cincinnati. It was her a few days later that they made the diagnosis. But the initial bloodwork taken at the first hospital is where the bacteria grew. We were very lucky. He was placed on six weeks of IV and oral antibiotics and has made almost a full recovery. He continues to get sore throats due to enlarged tonsils caused by mono. He needs to be on steroids until they remove his tonsils on July 7th. So three months into this disease and we are still dealing with the aftermath, but we know we are lucky. The more I read the more I realize just how lucky we are. I also continue to ask doctors whether they have heard of LS and the answers scare me. My ENT just yesterday really didn't know of it. I had to explain to him what it was. We are so sorry for your loss of such a beautiful boy. May he live on in your hearts and minds. I hope your crusade helps to make more Doctors aware of this horrible disease.Peg Richardshttps://www.blogger.com/profile/02969285954705866778noreply@blogger.comtag:blogger.com,1999:blog-5211323220282490702.post-47140132906737902452008-06-08T13:06:00.000-05:002008-06-08T13:06:00.000-05:00I am so sorry for your family's loss. Your story h...I am so sorry for your family's loss. Your story has really touched me (I read about it in the West Magazine). I will keep you all in my prayers. I also am spreading the awareness of this disease on to my family/friends. Life is so precious..it took us 3 years to have our son..he was born on the same day (3/6/08) Justin's niece was born. Thank you for spreading the word- know that you will save others.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5211323220282490702.post-59381637586699557532008-05-20T07:20:00.000-05:002008-05-20T07:20:00.000-05:00I've been wearing my blue bracelet since Thursday ...I've been wearing my blue bracelet since Thursday and when people ask about the meaning, I don't think they realize just what they are asking. I give them the whole story... getting the message across and having faith that they will tell at least 2 people, and those 2 will tell 2 more, and so on and so on. What a great site! I'm going to send this website to everyone I know.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5211323220282490702.post-18557672180262237462008-05-19T22:19:00.000-05:002008-05-19T22:19:00.000-05:00This is great that awareness is being raised. I w...This is great that awareness is being raised. I will continue to talk to people about Justin and Lemierre's syndrome to try to help educate more people about this syndrome.<BR/><BR/>LauraAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-5211323220282490702.post-55566341003804151422008-05-19T22:06:00.000-05:002008-05-19T22:06:00.000-05:00I've never heard of Lemierre's Syndrome until just...I've never heard of Lemierre's Syndrome until just a few days ago, and i wish they would have found an absolute cure for it years ago, also sorry to hear about Justin, i have heard alot about him... and i will send this link to everyone that i canAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-5211323220282490702.post-58879212620439503212008-05-19T20:57:00.000-05:002008-05-19T20:57:00.000-05:00This is awesome. I am going to pass this on to ev...This is awesome. I am going to pass this on to everyone I know. We have told everyone that will listen about Justin and Lemierre's syndrome.Terrihttps://www.blogger.com/profile/10182111943156894241noreply@blogger.com